CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0803-C09606	C09606	Brief Psychiatric Rating Scale (BPRS) - excitement score	The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F0803-C09591	C09591	Brief Psychiatric Rating Scale (BPRS) - anxiety score	The score of the participant's/subject's anxiety, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F0803-C09599	C09599	Brief Psychiatric Rating Scale (BPRS) - hostility score	The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F0803-C09607	C09607	Brief Psychiatric Rating Scale (BPRS) - disorientation score	The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F0803-C09592	C09592	Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score	The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F0803-C09600	C09600	Brief Psychiatric Rating Scale (BPRS) - suspiciousness score	The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1103-C58582	C58582	Genetic presumed genetic epilepsy etiology type	The categorization for genetic or presumed genetic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58587	C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58605	C58605	Metabolic toxic epilepsy etiology type	The categorization for metabolic toxic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58606	C58606	Other epilepsy etiology type	The categorization for other etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C14425	C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C14426	C14426	Epilepsy etiology primary type	Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C14427	C14427	Epilepsy etiology secondary type	Secondary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58580	C58580	Specific epilepsy etiology classification type	The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies	Core	Classification of Etiology	False	Epilepsy	Epilepsy
F1102-C58585	C58585	Seizure focal aware motor present status	The status indicating the degree to which a motor/observable focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58594	C58594	Seizure focal unknown awareness no observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure without observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58602	C58602	Seizure epilepsy unknown onset subtype status	The element related to the degree to which a seizure of unknown onset is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58586	C58586	Seizure focal aware non-motor present status	The status indicating the degree to which a non-motor focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58595	C58595	Seizure focal onset clonic present status	The status indicating the degree to which a focal onset clonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58603	C58603	Seizure epilepsy unknown onset subtype type	The element related to type of unknown onset seizures the participant/subject is experiencing	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58588	C58588	Seizure focal impaired awareness present status	The status indicating the degree to which a focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58596	C58596	Seizure focal onset tonic present status	The status indicating the degree to which a focal onset tonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58604	C58604	Seizure unclassified classification status	The element related to the degree to which unclassified seizures are present	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58589	C58589	Seizure focal impaired awareness motor present status	The status indicating the degree to which a motor/observable focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.