CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 883

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1118-C18548	C18548	Medication anti-epileptic drug plasma concentration log line number	The reference line number of an entry on the anti-epileptic drug (AED) plasma concentration log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1117-C14495	C14495	Medication anti-epileptic drug appropriate indicator	Indicator as to whether the anti-epileptic drug (AED) provided sufficient control for the participant's/subject's epilepsy syndrome	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18544	C18544	Medication anti-epileptic drug formulation indicator	The yes/no indicator for formulation of the prior/concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14496	C14496	Medication anti-epileptic drug three months therapy without discontinuation indicator	Indicator as to whether the duration of therapy exceeded 3 months without discontinuation due to adverse events	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18545	C18545	Medication anti-epileptic drug log line number	The referenced line number of an entry on the anti-epileptic drug (AED) log	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14497	C14497	Medication anti-epileptic drug dose adjustment attempt indicator	Indicator as to whether attempts were made to adjust the dose of the anti-epileptic drug (AED) prior to discontinuation	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18735	C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14498	C14498	Medication anti-epileptic drug seizure despite adjustment indicator	Indicator as to whether, after adjusting dose of anti-epileptic drug (AED), the subject continued to experienced seizures	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18540	C18540	Medication dosing schedule administration time	Medication administration time schedule	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18541	C18541	Medication anti-epileptic drug name	Name of the prior or concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C08223	C08223	Medication prior or concomitant discontinuation reason	Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18542	C18542	Responses all known indicator	The yes/no indicator where all the answers on the form were known	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14142	C14142	Medication prior or concomitant formulation text	Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18543	C18543	Responses all positive indicator	The yes/no indicator where all the answers on the form were "Yes"	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1116-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C18539	C18539	Medication generic or brand type	The identification of the medication label or manufacture as being either a brand name product or generic product	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C18735	C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C08223	C08223	Medication prior or concomitant discontinuation reason	Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.