CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59426	C59426	Surgery diagnostic electrode foramen ovale anatomic site	Anatomic location(s) of the brain with surgically implanted diagnostic foramen ovale electrodes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59571	C59571	Therapeutic brain stimulation subcortical subthalamic nucleus procedure laterality type	Laterality type relative to the subthalamic nucleus area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59439	C59439	Surgery diagnostic electrode foramen ovale amygdala laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the amygdala area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59579	C59579	Surgery post-operative cranial nerve deficit complication text	Text describing details for the cranial nerve deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59369	C59369	Suspected pathology type other text	The free-text field related to 'Suspected pathology type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14365	C14365	Surgical language laterality type	The apparent responsibility (or dominance) for production of language that is related to the side of the body and brain being treated during a surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59501	C59501	Surgery neocortical resection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14307	C14307	Surgery anterior temporal lobectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59549	C59549	Surgery stereotactic lesion parietal laterality type	Laterality type relative to the parietal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14373	C14373	Pathology lesionectomy infectious or inflammatory finding type	The type of cellular abnormalities arising in conjunction with infection or inflammation that are found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59509	C59509	Surgery neocortical resection largest depth estimated value	The largest estimated depth (in cm) of resection that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14316	C14316	Surgery lesionectomy suspect lesion anatomic site	Anatomic location(s) of the suspected anatomical abnormality in the brain to be evaluated during a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59557	C59557	Therapeutic brain stimulation procedure cortical anatomic site	Anatomic location(s) upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14381	C14381	Surgery post-operative return to operating room indicator	Indicator for whether the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59517	C59517	Surgery multi-lobar occipital lobe resection estimate type	Type of estimated percentage relative to occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14330	C14330	Surgery multi-lobar resection lobe anatomic site	The anatomic location(s) for a lobe of the brain from which tissue was removed during surgery to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C14425	C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C59565	C59565	Therapeutic brain stimulation cortical central cortex procedure laterality type	Laterality type relative to the central cortex area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17643	C17643	Surgical or therapeutic procedure text	The text describing the surgical or therapeutic procedure received by the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1123-C59525	C59525	Surgery multi-lobar percent estimate frontal lobe resection remove type	Type of estimated percentage relative to frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14349	C14349	Therapeutic brain stimulation target anatomic site	The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C18922	C18922	Therapeutic brain stimulation placement method other text	The free-text field related to 'Therapeutic brain stimulation placement method type' specifying other text. The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59533	C59533	Surgery corpus callosotomy disconnection tissue type	Type of tissue disconnection relative to corpus callosotomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.