CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 151 - 175 of 1360

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59511	Surgery multi-lobar temporal lobe resection indicator	Indicator of whether temporal lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14318	Surgery lesionectomy plus adjacent resection indicator	The indicator for whether resection extended to adjacent structures during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59471	Surgery anterior temporal lobectomy plus extended resection occipital laterality type	Laterality type relative to resection extended into the occipital area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C59519	Surgery multi-lobar parietal lobe resection indicator	Indicator of whether parietal lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14338	Surgery corpus callosotomy disconnection extent type	The extent of disconnection of tissue resected from the corpus callosum during surgery for the treatment of seizures by transecting the largest white matter tract connecting the hemispheres of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59479	Surgery amygdalohippocampectomy approach anatomic site other text	The free-text field related to 'Surgery amygdalohippocampectomy approach anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C59527	Surgery multi-lobar insula resection indicator	Indicator of whether insula tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14351	Therapeutic brain stimulation lateral coordinates value	The value measuring lateral placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59487	Surgery lesionectomy suspect lesion orbitofrontal laterality type	Laterality type relative to a suspected lesion in the orbitofrontal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14479	Epilepsy syndrome less specific age relationship type	Common epilepsy syndromes that have a less specific age or no association with a specific age on onset	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C59535	Surgery multiple subpial transection medial temporal laterality type	Laterality type relative to the medial temporal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14359	Therapeutic brain stimulation pulse width value	The time interval between the first and last instants at which the instantaneous amplitude reaches a stated fraction of the peak pulse amplitude	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59495	Surgery lesionectomy plus resection extent type	Type of extended resection to remove an anatomical abnormality in the brain during a lesionectomy plus surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14301	Surgery anterior temporal lobectomy inferior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the inferior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
C59503	Surgery neocortical resection medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14309	Surgery anterior temporal lobectomy plus resected tissue estimated volume value	The estimated volume (in cm^3) of tissue resected from adjacent brain structures during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59463	Surgery diagnostic electrode other type parietal laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59380	Surgery diagnostic electrode depth other laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59550	Surgery stereotactic lesion orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14374	Pathology lesionectomy congenital malformation finding type	The type of cortical congenital malformation or developmental abnormality found in conjunction with other cellular abnormalities identified during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59388	Surgery diagnostic electrode subdural insula laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59558	Therapeutic brain stimulation procedure cortical hippocampus laterality type	Laterality type relative to the hippocampus area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.