CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14373	C14373	Pathology lesionectomy infectious or inflammatory finding type	The type of cellular abnormalities arising in conjunction with infection or inflammation that are found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59572	C59572	Therapeutic brain stimulation subcortical brainstem laterality procedure type	Laterality type relative to the brainstem area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C58587	C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C14316	C14316	Surgery lesionectomy suspect lesion anatomic site	Anatomic location(s) of the suspected anatomical abnormality in the brain to be evaluated during a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14381	C14381	Surgery post-operative return to operating room indicator	Indicator for whether the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59580	C59580	Surgery post-operative medical complication wound infection type	The type of wound infection event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14473	C14473	Epilepsy syndrome infant onset type	Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14330	C14330	Surgery multi-lobar resection lobe anatomic site	The anatomic location(s) for a lobe of the brain from which tissue was removed during surgery to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13208	C13208	Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale	Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1123-C17643	C17643	Surgical or therapeutic procedure text	The text describing the surgical or therapeutic procedure received by the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14349	C14349	Therapeutic brain stimulation target anatomic site	The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59527	C59527	Surgery multi-lobar insula resection indicator	Indicator of whether insula tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59463	C59463	Surgery diagnostic electrode other type parietal laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59378	C59378	Surgery diagnostic electrode depth insula laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59535	C59535	Surgery multiple subpial transection medial temporal laterality type	Laterality type relative to the medial temporal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59495	C59495	Surgery lesionectomy plus resection extent type	Type of extended resection to remove an anatomical abnormality in the brain during a lesionectomy plus surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59471	C59471	Surgery anterior temporal lobectomy plus extended resection occipital laterality type	Laterality type relative to resection extended into the occipital area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59386	C59386	Surgery diagnostic electrode subdural parietal laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59543	C59543	Surgery stereotactic lesion present MRI indicator	Indicator of whether a lesion was present in MRI imaging for the participant/subject prior to stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59503	C59503	Surgery neocortical resection medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59479	C59479	Surgery amygdalohippocampectomy approach anatomic site other text	The free-text field related to 'Surgery amygdalohippocampectomy approach anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59395	C59395	Surgery diagnostic electrode epidural frontal laterality type	Laterality type relative to diagnostic epidural electrodes surgical placement in the frontal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59551	C59551	Surgery stereotactic lesion dorsolateral frontal laterality type	Laterality type relative to the dorsolateral frontal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59511	C59511	Surgery multi-lobar temporal lobe resection indicator	Indicator of whether temporal lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59487	C59487	Surgery lesionectomy suspect lesion orbitofrontal laterality type	Laterality type relative to a suspected lesion in the orbitofrontal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.