CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C14475	Epilepsy syndrome childhood onset type	Common epilepsy syndromes for children, 2-12 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
C13205	Generalized Anxiety Disorder (GAD-7) - feeling nervous scale	Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
C14138	Seizure daily diary seizure type count	The number of seizures of the particular seizure type that the participant/subject experienced on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
C59501	Surgery neocortical resection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14307	Surgery anterior temporal lobectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59461	Surgery diagnostic electrode other type frontal laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the frontal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Epilepsy	Epilepsy
C59509	Surgery neocortical resection largest depth estimated value	The largest estimated depth (in cm) of resection that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14316	Surgery lesionectomy suspect lesion anatomic site	Anatomic location(s) of the suspected anatomical abnormality in the brain to be evaluated during a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59469	Surgery anterior temporal lobectomy resection size estimate type	Type of tissue size estimation type relative to anterior temporal lobectomy resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59517	Surgery multi-lobar occipital lobe resection estimate type	Type of estimated percentage relative to occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14330	Surgery multi-lobar resection lobe anatomic site	The anatomic location(s) for a lobe of the brain from which tissue was removed during surgery to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59477	Surgery anterior temporal lobectomy plus resection size estimate type	Type of tissue size estimation relative to tissue resectioned beyond during an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59525	Surgery multi-lobar percent estimate frontal lobe resection remove type	Type of estimated percentage relative to frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14349	Therapeutic brain stimulation target anatomic site	The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59485	Surgery lesionectomy suspected lesion parietal laterality type	Laterality type relative to the parietal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59533	Surgery corpus callosotomy disconnection tissue type	Type of tissue disconnection relative to corpus callosotomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14357	Therapeutic brain stimulation pulse current value	The rate of flow of electrical charges through an electrode during stimulation pulses, measured in milliamperes, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59493	Surgery lesionectomy suspect lesion other anatomic site laterality type	Laterality type relative to a suspected lesion in the another area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14299	Surgery anterior temporal lobectomy superior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the superior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59440	Surgery diagnostic electrode foramen ovale other laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59580	Surgery post-operative medical complication wound infection type	The type of wound infection event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59370	Surgery diagnostic electrode type other text	The free-text field related to 'Surgery diagnostic electrode type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59540	Surgery multiple subpial transection medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.