CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0803-C09602	C09602	Brief Psychiatric Rating Scale (BPRS) - motor retardation score	The score of the participant's/subject's motor retardation, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1118-C14418	C14418	Medication plasma concentration result	Measurement of the concentration of the drug in the blood plasma	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C14964	C14964	Sedation used indicator	Indicator of whether the participant was administered any sedation	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1116-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1109-C13962	C13962	Seizure last occurrence date and time	The date and time the last seizure occurred	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1100-C00024	C00024	Language primary ISO code	Code (ISO 639-2) for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F3064-C13973	C13973	Imaging epilepsy-specific protocol indicator	The protocol pertains to epilepsy	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1119-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1114-C13962	C13962	Seizure last occurrence date and time	The date and time the last seizure occurred	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1116-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1109-C13971	C13971	Imaging region of interest activation mean value	The average amount of activation observed/measured in the region of interest (ROI)	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1101-C12607	C12607	Education level maternal USA type	Indicator of the highest level of education completed by the participant/subject's mother	Supplemental	Social Status	False	Epilepsy	Epilepsy
F1119-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1106-C14451	C14451	Muscle weakness neurological anatomic site	Anatomic location of neurological muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1441-C17431	C17431	EEG focal sharp waves indicator	The yes/no indicator for electroencephalography (EEG) focal sharp waves	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1121-C18958	C18958	Device neurostimulator anatomic other text	The free-text field related to 'Device neurostimulator anatomic site' specifying other text. The location in the body of where the device is providing electrical stimulation	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1126-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1115-C14591	C14591	EEG ictal onset pattern type	Brain wave pattern on electroencephalogram (EEG) during onset of Ictal discharge	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C14502	C14502	Device start date and time	Date (and time, if applicable and known) the device was functional and therapy was started with the parameters specified	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1106-C14461	C14461	Reflex assessment limb result	The results from reflex limb assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14551	C14551	EEG behavioral state recorded type	The recorded state(s) of the subject during the electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1105-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1441-C17439	C17439	EEG other abnormalities text	The free text field to specify other electroencephalography (EEG) abnormalities	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1122-C14534	C14534	Device implanted revision or replacement reason	The reason for device revision/replacement	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1126-C18659	C18659	Unexpected adverse event indicator	Indicator of whether the adverse event is unexpected	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.