CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1115-C14601	C14601	EEG view type	The view or side of the participant/subject in the electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C14512	C14512	Device implanted negative electrode count	The number of negative electrodes used by the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1106-C14448	C14448	Muscle strength abnormality assessment type	The muscle strength abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14561	C14561	EEG interictal abnormality date and time	Date (and time, if applicable and known) of the inter-Ictal abnormality recorded by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F3064-C14043	C14043	Imaging atrophy tissue loss type	Type of atrophy or tissue loss for which the assessment is being completed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21489	C21489	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest last trial correct digit score	Score for the digits reported correctly by the subject/participant during the last trial of the Digit Span Forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV)	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1122-C18572	C18572	Device implanted nerve stimulator new component registration number	The registration number of the new implanted nerve stimulator (INS) component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1106-C18947	C18947	Sensory system global assessment other text	The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14609	C14609	EEG ictal eye sign laterality type	The location of eye sign from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1441-C17433	C17433	EEG generalized epileptiform abnormalities status	The status for electroencephalography (EEG) generalized epileptiform abnormalities	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1126-C02307	C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1118-C14421	C14421	Medication plasma concentration no adherence clinically significant indicator	Whether the clinician expects or is able to confirm clinically significant non adherence to the prescribed drug dosing regimen based on the drug plasma concentration results	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1110-C13989	C13989	Imaging ictal single-photon emission computed tomography localization rating type	localization rating indicator of imaging using ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1116-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1102-C58594	C58594	Seizure focal unknown awareness no observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure without observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1107-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F0803-C09593	C09593	Brief Psychiatric Rating Scale (BPRS) - conceptual disorganization score	The score of the participant's/subject's conceptual disorganization, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1441-C18966	C18966	EEG activating procedures used other text	The free-text field related to 'EEG activating procedures used type' specifying other text. Type(s) of procedures used to improve the electroencephalogram (EEG) diagnostic yield by inducing or enhancing epileptogenic paroxysms	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1143-C10479	C10479	School special accommodation indicator	Whether the participant/subject ever received special accommodations for school coursework	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1119-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1111-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1116-C10636	C10636	Medication prior or concomitant PRN average monthly frequency	Average frequency per month for medications that are taken on an as needed basis (PRN)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1102-C58602	C58602	Seizure epilepsy unknown onset subtype status	The element related to the degree to which a seizure of unknown onset is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1107-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F0803-C09601	C09601	Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score	The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.