CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 451 - 475 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1104-C18952	C18952	Epilepsy syndrome childhood onset other text	The free-text field related to 'Epilepsy syndrome childhood onset type' specifying other text. Common epilepsy syndromes for children, 2-12 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1806-C19504	C19504	Family member body uncontrolled movement indicator	Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1102-C58589	C58589	Seizure focal impaired awareness motor present status	The status indicating the degree to which a motor/observable focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1143-C14118	C14118	Disability application status	People 5 years old and over are considered to have a disability if they have one or more of the following (a) blindness, deafness, or a severe vision or hearing impairment; (b) a substantial limitation in the ability to perform basic physical activities, such as walking, climbing stairs, reaching, lifting, or carrying; (c) difficulty learning, remembering, or concentrating; or (d)difficulty dressing, bathing, or getting around inside the home	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1118-C14413	C14413	Medication plasma concentration medication name	Generic or brand name of the medication for which the plasma concentration is measured	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C13985	C13985	Imaging magnetoencephalography evoked field acquisition epoch number	Magnetoencephalography (MEG) acquisition evoked field epoch number	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1115-C18983	C18983	EEG ictal other sign other text	The free-text field related to 'EEG ictal other sign type' specifying other text. Other forms of response behavior that have not been covered previously	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1107-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1806-C19512	C19512	Diagnosis giver type	Type of professional who gave the diagnosis	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1102-C58597	C58597	Seizure focal onset atonic present status	The status indicating the degree to which a focal onset atonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1118-C14421	C14421	Medication plasma concentration no adherence clinically significant indicator	Whether the clinician expects or is able to confirm clinically significant non adherence to the prescribed drug dosing regimen based on the drug plasma concentration results	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F0803-C09596	C09596	Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score	The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1111-C18524	C18524	Imaging magnetoencephalography evoked field acquisition sedation type	Indicates type of sedative drugs were used to facilitate magnetoencephalography (MEG) acquisition	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1116-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1109-C13965	C13965	Imaging paradigm task design type	Nature of stimuli presented	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1102-C58607	C58607	Seizure epilepsy generalized subtype status	The element related to the degree to which a generalized seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1441-C14554	C14554	EEG posterior dominant rhythm frequency	The frequency of posterior dominant rhythm during relaxed wakefulness (Hz) during electroencephalography (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1119-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F0803-C09604	C09604	Brief Psychiatric Rating Scale (BPRS) - unusual thought content score	The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1114-C13996	C13996	PET localization uptake type	Indicates the degree of absorption or level of ligand tracer binding in the brain scan	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1116-C10636	C10636	Medication prior or concomitant PRN average monthly frequency	Average frequency per month for medications that are taken on an as needed basis (PRN)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1109-C18519	C18519	Imaging temporal brain area language type	Imaging location on temporal brain area for language	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1115-C14586	C14586	EEG full ictal propagation localized focal electrical field type	Electrode points at which there was ictal propagation of discharge on electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C18556	C18556	Device implanted intolerable stimulation adverse effect modification description text	The reason for modification of original parameters or original electrode configuration of implanted device due to intolerable stimulation related Adverse Event (AE), specification	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C05463	C05463	EEG monitoring type	Type of electroencephalogram (EEG) monitoring	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.