CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14372	C14372	Pathology lesionectomy cortical dysplasia indicator	Indicator for whether cortical dysplasia was found in conjunction with other cellular abnormalities identified during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59508	C59508	Surgery neocortical resection largest lateral extent estimated value	The longest estimated length (in cm) of resection, in the lateral (LAT) dimension, that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14314	C14314	Surgery amygdalohippocampectomy approach anatomic site	The relative pathway taken by the surgeon to gain access to the hippocampus described in terms of other surrounding brain structures	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59556	C59556	Therapeutic brain stimulation procedure type	Type of method used for therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14380	C14380	Surgery post-operative readmission 30 days after surgery indicator	Indicator for whether the participant/subject is readmitted to the hospital within the 30 days after a surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59516	C59516	Surgery multi-lobar occipital lobe resection laterality type	Laterality type relative to occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14329	C14329	Surgery multi-lobar resection lesion indicator	Indicator for whether an anatomic abnormality was identified during surgery to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59564	C59564	Therapeutic brain stimulation cortical medial frontal procedure laterality type	Laterality type relative to the medial frontal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17641	C17641	Surgery post-operative return to operating room reason	The text explaining the circumstances for why the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13210	C13210	Generalized Anxiety Disorder (GAD-7) - easily annoyed scale	Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1123-C59524	C59524	Surgery multi-lobar frontal lobe resection laterality type	Laterality type relative to frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14347	C14347	Surgery radiosurgery marginal dose value	The numeric value measured for the dose of radiation (in Grays) delivered to the outer edge of the tumor	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C58606	C58606	Other epilepsy etiology type	The categorization for other etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C18921	C18921	Therapeutic brain stimulation target anatomic other text	The free-text field related to 'Therapeutic brain stimulation target anatomic site' specifying other text. The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59532	C59532	Surgery vagus nerve stimulation laterality type	Laterality type relative to vagus nerve stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14356	C14356	Therapeutic brain stimulation pulse voltage value	The electrical electrical potential difference measured for stimulation pulses, in Volts, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59492	C59492	Surgery lesionectomy suspect lesion multifocal laterality type	Laterality type relative to a suspected lesion in the multifocal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14477	C14477	Epilepsy syndrome adolescence adult onset type	Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1441-C17425	C17425	EEG duration	The length of time for the Electroencephalography (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C18534	C18534	Electroencephalography interictal epileptiform no localized onset description text	The free-text field to describe the nonlocalized onset of interictal epileptiform	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1121-C18558	C18558	Device implanted other adverse effect modification description text	The reason for modification of original parameters or original electrode configuration of implanted device due to other Adverse Event (AE), specification	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1106-C18943	C18943	Cerebellar or coordination assessment abnormality explain other text	The free-text field related to 'Cerebellar or coordination assessment abnormality present type' specifying other text for explaining the type of abnormality found by the cerebellar/coordination assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14585	C14585	EEG ictal onset localized focal electrical field type	Electrode points at which onset of ictal discharge occurred on electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1119-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1106-C14453	C14453	Tremor type	The type of tremor detected during the exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.