CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 26 - 50 of 1360

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C14383	Surgery post-operative complication resolved date	The date of resolution of symptoms for a complication the participant/subject experienced after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59412	Surgery diagnostic electrode epidural occipital laterality type	Laterality type relative to diagnostic epidural electrodes placement in the occipital area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59567	Therapeutic brain stimulation subcortical procedure anatomic site	The anatomic location upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C18585	Surgery post-operative aphasia complication text	The text describing details for the aphasia event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59431	Surgery diagnostic electrode foramen ovale temporal laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the temporal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59575	Pathology lesionectomy tumor mixed glioma grade	Description of a mixed glioma tumor based on how abnormal the cancer cells and tissue look under a microscope and how quickly the cancer cells are likely to grow and spread.	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C18924	Pathology lesionectomy tumor finding other text	The free-text field related to 'Pathology lesionectomy tumor finding type' specifying other text. The type or classification of malignant tumor tissue found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59373	Surgery diagnostic electrode depth hippocampus laterality type	Laterality type relative to diagnostic depth electrodes placement in the hippocampus area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59543	Surgery stereotactic lesion present MRI indicator	Indicator of whether a lesion was present in MRI imaging for the participant/subject prior to stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59505	Surgery neocortical resection insula laterality type	Laterality type relative to the insula area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C14311	Surgery amygdalohippocampectomy parahippocampal estimated length value	The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59465	Surgery diagnostic electrode other type insula laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59513	Surgery multi-lobar temporal lobe resection percent estimate remove type	Type of estimated percentage relative to temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C14320	Surgery lesionectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59473	Surgery anterior temporal lobectomy plus extended resection orbitofrontal laterality type	Laterality type relative to resection extended into the orbitofrontal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59521	Surgery multi-lobar percent estimate parietal lobe resection remove type	Type of estimated percent of parietal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14479	Epilepsy syndrome less specific age relationship type	Common epilepsy syndromes that have a less specific age or no association with a specific age on onset	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C14340	Surgery multiple subpial transection largest lateral dimension estimated value	The longest estimated length (in cm) of tissue transected in the lateral (LAT) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59481	Surgery lesionectomy suspect lesion anatomic site other text	The free-text field related to 'Surgery lesionectomy suspected lesion anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59529	Surgery multi-lobar percent estimate insula resection remove type	Type of estimated percentage relative to insula tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14353	Therapeutic brain stimulation placement method type	The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59489	Surgery lesionectomy suspect lesion medial frontal laterality type	Laterality type relative to a suspected lesion in the medial frontal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.