CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59386	Surgery diagnostic electrode subdural parietal laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59556	Therapeutic brain stimulation procedure type	Type of method used for therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14380	Surgery post-operative readmission 30 days after surgery indicator	Indicator for whether the participant/subject is readmitted to the hospital within the 30 days after a surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59395	Surgery diagnostic electrode epidural frontal laterality type	Laterality type relative to diagnostic epidural electrodes surgical placement in the frontal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59564	Therapeutic brain stimulation cortical medial frontal procedure laterality type	Laterality type relative to the medial frontal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C17641	Surgery post-operative return to operating room reason	The text explaining the circumstances for why the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59427	Surgery diagnostic electrode foramen ovale anatomic site other text	The free-text field related to 'Surgery diagnostic electrode foramen ovale anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59572	Therapeutic brain stimulation subcortical brainstem laterality procedure type	Laterality type relative to the brainstem area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C58604	Seizure unclassified classification status	The element related to the degree to which unclassified seizures are present	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
C18921	Therapeutic brain stimulation target anatomic other text	The free-text field related to 'Therapeutic brain stimulation target anatomic site' specifying other text. The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59440	Surgery diagnostic electrode foramen ovale other laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59580	Surgery post-operative medical complication wound infection type	The type of wound infection event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C58605	Metabolic toxic epilepsy etiology type	The categorization for metabolic toxic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C59370	Surgery diagnostic electrode type other text	The free-text field related to 'Surgery diagnostic electrode type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59540	Surgery multiple subpial transection medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14475	Epilepsy syndrome childhood onset type	Common epilepsy syndromes for children, 2-12 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C59378	Surgery diagnostic electrode depth insula laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59548	Surgery stereotactic lesion occipital laterality type	Laterality type relative to the occipital area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14372	Pathology lesionectomy cortical dysplasia indicator	Indicator for whether cortical dysplasia was found in conjunction with other cellular abnormalities identified during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14317	Surgery lesionectomy resection extent type	The extent of resection to remove an anatomical abnormality in the brain during a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59470	Surgery anterior temporal lobectomy plus extended resection lateral temporal laterality type	Laterality type relative to resection extended into the lateral temporal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59518	Surgery multi-lobar percent estimate occipital lobe resection remove range	Range of estimated percentage of occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14335	Surgery hemispherectomy type	Type of a surgical procedure where one cerebral hemisphere (half of the brain) is removed or disabled	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59478	Surgery amygdalohippocampectomy laterality type	Laterality type relative to amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59526	Surgery multi-lobar percent estimate frontal lobe resection remove range	Range of estimated percentage of frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.