CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1219
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14473 Epilepsy syndrome infant onset type

Common epilepsy syndromes for infants, children less than 2 years of age.

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C58587 Structural epilepsy etiology type

The categorization for structural etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14134 Data valid through date and time

Date (and time, if applicable and known) the data collected are valid through

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C14475 Epilepsy syndrome childhood onset type

Common epilepsy syndromes for children, 2-12 years of age.

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C58604 Seizure unclassified classification status

The element related to the degree to which unclassified seizures are present

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C58605 Metabolic toxic epilepsy etiology type

The categorization for metabolic toxic etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C58583 Seizure epilepsy focal classification type

The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject.

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C14477 Epilepsy syndrome adolescence adult onset type

Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age.

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C10626 Condition diary date and time

Date (and time, if applicable and known) the diary data are recorded

Supplemental-Highly Recommended Seizure Diary Epilepsy Epilepsy
C58606 Other epilepsy etiology type

The categorization for other etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14479 Epilepsy syndrome less specific age relationship type

Common epilepsy syndromes that have a less specific age or no association with a specific age on onset.

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C10635 Seizure daily diary seizure type

Type of seizure experienced by the participant/subject on the specific date

Supplemental-Highly Recommended Seizure Diary Epilepsy Epilepsy
C14425 Epilepsy etiology specific attribution confidence type

The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors.

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14481 Epilepsy syndrome distinctive constellation type

Syndromes with distinctive constellations, diagnostically meaningful forms of epilepsy and may have implications for clinical treatment, particularly surgery.

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C58599 Seizure epilepsy generalized classification type

The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject.

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C14136 Seizure daily diary no seizure indicator

The indicator of whether the participant/subject experienced NO seizures on the corresponding date

Supplemental-Highly Recommended Seizure Diary Epilepsy Epilepsy
C14426 Epilepsy etiology primary type

Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible).

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14134 Data valid through date and time

Date (and time, if applicable and known) the data collected are valid through

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C13205 Generalized Anxiety Disorder (GAD-7) - feeling nervous scale

Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14138 Seizure daily diary seizure type count

The number of seizures of the particular seizure type that the participant/subject experienced on the corresponding date

Supplemental-Highly Recommended Seizure Diary Epilepsy Epilepsy
Displaying 1 - 25 of 1219

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.