CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59383	Surgery diagnostic electrode subdural hippocampus laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the hippocampus area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59553	Surgery stereotactic lesion central cortex laterality type	Laterality type relative to the central cortex area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14377	Surgery post-operative seizure count	The value counting the number of seizure events that the participant/subject experienced within 30 days after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59391	Surgery diagnostic electrode epidural anatomic site	Anatomic location(s) of the brain with surgically implanted diagnostic epidural electrodes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59561	Therapeutic brain stimulation cortical parietal procedure laterality type	Laterality type relative to the parietal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C17638	Surgery post-operative psychiatric complication text	The text describing details for the psychiatric event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59416	Surgery diagnostic electrode epidural amygdala laterality type	Laterality type relative to diagnostic epidural electrodes surgical placement in the amygdala area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59569	Therapeutic brain stimulation subcortical centromedian thalamus procedure laterality type	Laterality type relative to the centromedian thalamus area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C18587	Surgery post-operative memory deficit complication text	The text describing details for the memory deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59435	Surgery diagnostic electrode foramen ovale occipital laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the occipital area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59577	Pathology lesionectomy tumor other low grade developmental grade	Description of an other low grade developmental tumor based on how abnormal the cancer cells and tissue look under a microscope and how quickly the cancer cells are likely to grow and spread.	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59375	Surgery diagnostic electrode depth temporal laterality type	Laterality type relative to diagnostic depth electrodes placement in the temporal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59545	Surgery stereotactic lesion perform anatomic site	Anatomic location(s) in the brain where stereotactic lesioning surgical procedure is performed	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14369	Pathology temporal lobectomy hippocampus finding type	The type of damage or cellular abnormality found in tissue from the hippocampus removed during a temporal lobectomy procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14313	Surgery amygdalohippocampectomy hippocampus estimated length value	The estimated length of tissue (in cm) resected from the hippocampus in the brain during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14479	Epilepsy syndrome less specific age relationship type	Common epilepsy syndromes that have a less specific age or no association with a specific age on onset	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C59467	Surgery diagnostic electrode other type other laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59515	Surgery multi-lobar occipital lobe resection indicator	Indicator of whether occipital lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14322	Surgery lesionectomy plus resected tissue estimated volume value	The estimated volume (in cm^3) of tissue resected from adjacent brain structures during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59475	Surgery anterior temporal lobectomy plus extended resection medial frontal laterality type	Laterality type relative to resection extended into the medial frontal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59523	Surgery multi-lobar frontal lobe resection indicator	Indicator of whether frontal lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14342	Surgery multiple subpial transection with resection indicator	Indicator for whether brain tissue was removed at the same time that nerve fibers in the gray matter were cut during multiple subpial transection (MST) surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59483	Surgery lesionectomy suspect lesion medial temporal laterality type	Laterality type relative to suspected lesion in the medial temporal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59531	Surgery hemispherectomy laterality type	Laterality type relative to hemispherectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14355	Therapeutic brain stimulation pulse frequency	The electrical frequency measured for stimulation pulses, reported in cycles per second, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.