CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 883
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59510 Surgery neocortical resection tissue estimated volume value

The estimated volume (in cm^3) of tissue resected from adjacent brain structures during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14317 Surgery lesionectomy resection extent type

The extent of resection to remove an anatomical abnormality in the brain during a lesionectomy surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C58599 Seizure epilepsy generalized classification type

The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C59558 Therapeutic brain stimulation procedure cortical hippocampus laterality type

Laterality type relative to the hippocampus area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14382 Surgery post-operative complication text

Text describing the complication that the participant/subject experienced after surgery

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C59518 Surgery multi-lobar percent estimate occipital lobe resection remove range

Range of estimated percentage of occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14335 Surgery hemispherectomy type

Type of a surgical procedure where one cerebral hemisphere (half of the brain) is removed or disabled

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14426 Epilepsy etiology primary type

Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C59566 Therapeutic brain stimulation cortical insula procedure laterality type

Laterality type relative to the insula area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C18584 Surgery post-operative altered state complication text

The text describing details for the altered mental status event or complication(s) affecting the nervous system or brain functionality that occurred after surgery

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C13212 Generalized Anxiety Disorder (GAD-7) - total score

Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C59526 Surgery multi-lobar percent estimate frontal lobe resection remove range

Range of estimated percentage of frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14350 Therapeutic brain stimulation anterior-posterior coordinates value

The value measuring anterior-posterior placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14134 Data valid through date and time

Date (and time, if applicable and known) the data collected are valid through

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C59534 Surgery multiple subpial transection lateral temporal laterality type

Laterality type relative to the lateral temporal area of the brain for a multiple subpial transection surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14358 Therapeutic brain stimulation pulse polarity type

The initial orientation or setting for polarity of stimulus pulses for a therapeutic brain stimulation procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C59494 Surgery lesionectomy resection size estimate type

Type of tissue size estimation relative to a lesionectomy resection surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14481 Epilepsy syndrome distinctive constellation type

Syndromes with distinctive constellations, diagnostically meaningful forms of epilepsy and may have implications for clinical treatment, particularly surgery

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14300 Surgery anterior temporal lobectomy middle temporal gyrus resection estimated length value

The estimated length of tissue (in cm) resected from the middle temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C59542 Surgery multiple subpial transection estimate size type

Type of tissue size estimation relative to multiple subpial transection surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14366 Surgery intraoperative electrocorticogram type

The type of electrocorticogram (ECoG) used during a surgical procedure. ECoG is the practice of using electrodes placed directly on the exposed surface of the brain to record electrical activity from the cerebral cortex

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C59502 Surgery neocortical resection dorsolateral frontal laterality type

Laterality type relative to dorsolateral frontal area of the brain for a neocortical resection surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14308 Surgery anterior temporal lobectomy plus largest depth of resection estimated value

The largest estimated depth (in cm) of resection into adjacent brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C59550 Surgery stereotactic lesion orbitofrontal laterality type

Laterality type relative to the orbitofrontal area of the brain for a stereotactic lesioning surgical procedure

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14374 Pathology lesionectomy congenital malformation finding type

The type of cortical congenital malformation or developmental abnormality found in conjunction with other cellular abnormalities identified during a lesionectomy

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
Displaying 1 - 25 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.