CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C59468	Surgery anterior temporal lobectomy laterality type	Laterality type relative to anterior temporal lobectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59383	Surgery diagnostic electrode subdural hippocampus laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the hippocampus area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C59476	Surgery anterior temporal lobectomy plus extended resection central cortex laterality type	Laterality type relative to resection extended into the central cortex area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59391	Surgery diagnostic electrode epidural anatomic site	Anatomic location(s) of the brain with surgically implanted diagnostic epidural electrodes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C59484	Surgery lesionectomy suspect lesion occipital laterality type	Laterality type relative to a suspected lesion in the occipital area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14139	Seizure diary completer type	The type of person recording the diary data	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
C59416	Surgery diagnostic electrode epidural amygdala laterality type	Laterality type relative to diagnostic epidural electrodes surgical placement in the amygdala area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14479	Epilepsy syndrome less specific age relationship type	Common epilepsy syndromes that have a less specific age or no association with a specific age on onset	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
C14297	Surgery diagnostic electrode type	The type of diagnostic electrode implanted during surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59435	Surgery diagnostic electrode foramen ovale occipital laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the occipital area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59577	Pathology lesionectomy tumor other low grade developmental grade	Description of an other low grade developmental tumor based on how abnormal the cancer cells and tissue look under a microscope and how quickly the cancer cells are likely to grow and spread.	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59460	Surgery diagnostic electrode other type hippocampus laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the hippocampus area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59375	Surgery diagnostic electrode depth temporal laterality type	Laterality type relative to diagnostic depth electrodes placement in the temporal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59555	Surgery stereotactic lesion periventricular laterality type	Laterality type relative to the periventricular area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14379	Surgery post-operative medical complication type	The type of event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59515	Surgery multi-lobar occipital lobe resection indicator	Indicator of whether occipital lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14322	Surgery lesionectomy plus resected tissue estimated volume value	The estimated volume (in cm^3) of tissue resected from adjacent brain structures during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59563	Therapeutic brain stimulation cortical dorsolateral frontal procedure laterality type	Laterality type relative to the dorsolateral frontal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C17640	Surgery post-operative respiratory complication text	The text describing details for the other respiratory event or complication(s) affecting general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
C59523	Surgery multi-lobar frontal lobe resection indicator	Indicator of whether frontal lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14342	Surgery multiple subpial transection with resection indicator	Indicator for whether brain tissue was removed at the same time that nerve fibers in the gray matter were cut during multiple subpial transection (MST) surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.