CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 883
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13962 Seizure last occurrence date and time

The date and time the last seizure occurred

 Supplemental Positron Emission Tomography (PET) Localization False Epilepsy Epilepsy
C13971 Imaging region of interest activation mean value

The average amount of activation observed/measured in the region of interest (ROI)

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Epilepsy Epilepsy
C12607 Education level maternal USA type

Indicator of the highest level of education completed by the participant/subject's mother

 Supplemental Social Status False Epilepsy Epilepsy
C14417 Medication plasma concentration last dose date and time

Date (and time if applicable and known) when the last dose was administered before the blood draw for the plasma concentration measurement

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18530 Imaging positron emission tomography ictal localization study type

Type of imaging study of the brain during a seizure using Ictal positron emission tomography (PET)

 Supplemental Positron Emission Tomography (PET) Localization False Epilepsy Epilepsy
C18950 Epilepsy syndrome neonatal onset other text

The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (

Supplemental Syndromes by Age of Onset False Epilepsy Epilepsy
C18895 Brain region of interest other text

The free-text field related to 'Brain region of interest type' specifying other text. Region of interest in the brain

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Epilepsy Epilepsy
C58586 Seizure focal aware non-motor present status

The status indicating the degree to which a non-motor focal aware seizure is present

 Supplemental Classification of Seizures False Epilepsy Epilepsy
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

 Supplemental Magnetic Resonance Imaging (MRI) False Epilepsy Epilepsy
C18548 Medication anti-epileptic drug plasma concentration log line number

The reference line number of an entry on the anti-epileptic drug (AED) plasma concentration log

 Supplemental AED Plasma Concentration False Epilepsy Epilepsy
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C13990 Imaging ictal single-photon emission computed tomography localization uptake status

Describes the status for the level of ligand tracer binding

 Supplemental Ictal Single-photon Emission Computed Tomography (SPECT) Localization False Epilepsy Epilepsy
C58595 Seizure focal onset clonic present status

The status indicating the degree to which a focal onset clonic seizure is present

 Supplemental Classification of Seizures False Epilepsy Epilepsy
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

 Supplemental Vital Signs False Epilepsy Epilepsy
C14040 Imaging vascular disorder type

Type of vascular disorder type for which the assessment is being completed

 Supplemental Magnetic Resonance Imaging (MRI) False Epilepsy Epilepsy
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Epilepsy Epilepsy
C21486 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial number

Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False Epilepsy Epilepsy
C18538 Medication discontinuation idiosyncratic side effect text

The free-text field to specify the idiosyncratic side effect that resulted in a discontinuation of medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C18963 EEG prolonged duration other text

The free-text field related to 'EEG prolonged duration type' specifying other text. The length of time for the prolonged electroencephalogram (EEG)

 Supplemental Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C13981 Imaging magnetoencephalography spontaneous brain activity duration

Duration of magnetoencephalography (MEG) a non-invasive diagnostic technique that directly measures the magnetic fields produced by electrical currents in the brain

 Supplemental Magnetoencephalography (MEG) Acquisition False Epilepsy Epilepsy
C58603 Seizure epilepsy unknown onset subtype type

The element related to type of unknown onset seizures the participant/subject is experiencing

 Supplemental Classification of Seizures False Epilepsy Epilepsy
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs False Epilepsy Epilepsy
C59592 Imaging abnormality description type

Type of description of imaging abnormalities

 Supplemental Magnetic Resonance Imaging (MRI) False Epilepsy Epilepsy
C09602 Brief Psychiatric Rating Scale (BPRS) - motor retardation score

The score of the participant's/subject's motor retardation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Epilepsy Epilepsy
Displaying 201 - 225 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.