CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 883
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19504 Family member body uncontrolled movement indicator

Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Supplemental Non Anti Epileptic Medication Log Epilepsy Epilepsy
C13962 Seizure last occurrence date and time

The date and time the last seizure occurred

Supplemental Positron Emission Tomography (PET) Localization Epilepsy Epilepsy
C14118 Disability application status

People 5 years old and over are considered to have a disability if they have one or more of the following (a) blindness, deafness, or a severe vision or hearing impairment; (b) a substantial limitation in the ability to perform basic physical activities, such as walking, climbing stairs, reaching, lifting, or carrying; (c) difficulty learning, remembering, or concentrating; or (d)difficulty dressing, bathing, or getting around inside the home

Supplemental Neuropsychological Testing Background Information Epilepsy Epilepsy
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C13971 Imaging region of interest activation mean value

The average amount of activation observed/measured in the region of interest (ROI)

Supplemental Functional Magnetic Resonance Imaging (fMRI) Epilepsy Epilepsy
C12607 Education level maternal USA type

Indicator of the highest level of education completed by the participant/subject's mother

Supplemental Social Status Epilepsy Epilepsy
C19512 Diagnosis giver type

Type of professional who gave the diagnosis

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C18530 Imaging positron emission tomography ictal localization study type

Type of imaging study of the brain during a seizure using Ictal positron emission tomography (PET)

Supplemental Positron Emission Tomography (PET) Localization Epilepsy Epilepsy
C18539 Medication generic or brand type

The identification of the medication label or manufacture as being either a brand name product or generic product

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C18950 Epilepsy syndrome neonatal onset other text

The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C18895 Brain region of interest other text

The free-text field related to 'Brain region of interest type' specifying other text. Region of interest in the brain

Supplemental Functional Magnetic Resonance Imaging (fMRI) Epilepsy Epilepsy
C18964 EEG location other text

The free-text field related to 'EEG location type' specifying other text. The location of where the electroencephalogram (EEG) took place

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C58586 Seizure focal aware non-motor present status

The status indicating the degree to which a non-motor focal aware seizure is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C14554 EEG posterior dominant rhythm frequency

The frequency of posterior dominant rhythm during relaxed wakefulness (Hz) during electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C14495 Medication anti-epileptic drug appropriate indicator

Indicator as to whether the anti-epileptic drug (AED) provided sufficient control for the participant's/subject's epilepsy syndrome

Supplemental AED Resistance Log Epilepsy Epilepsy
C13990 Imaging ictal single-photon emission computed tomography localization uptake status

Describes the status for the level of ligand tracer binding

Supplemental Ictal Single-photon Emission Computed Tomography (SPECT) Localization Epilepsy Epilepsy
C18972 EEG ictal onset location other text

The free-text field related to 'EEG ictal onset location type' specifying other text. The location on electroencephalogram (EEG) for ictal onset

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C58595 Seizure focal onset clonic present status

The status indicating the degree to which a focal onset clonic seizure is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental Vital Signs Epilepsy Epilepsy
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Epilepsy Epilepsy
C17429 EEG abnormal indicator

The yes/no indicator for abnormal assessment of electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C18544 Medication anti-epileptic drug formulation indicator

The yes/no indicator for formulation of the prior/concomitant anti-epileptic drug (AED)

Supplemental AED Resistance Log Epilepsy Epilepsy
C13981 Imaging magnetoencephalography spontaneous brain activity duration

Duration of magnetoencephalography (MEG) a non-invasive diagnostic technique that directly measures the magnetic fields produced by electrical currents in the brain

Supplemental Magnetoencephalography (MEG) Acquisition Epilepsy Epilepsy
C02303 Adverse event outcome status

Final status of the participant/subject related to the adverse event

Supplemental Adverse Event Tracking Log Epilepsy Epilepsy
Displaying 201 - 225 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.