CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C09599	Brief Psychiatric Rating Scale (BPRS) - hostility score	The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C14438	Motor exam global abnormality present indicator	Global assessment whether an abnormality was present following the motor exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C19505	Family member mental state awareness level unexplained change indicator	Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C14529	Device implanted revision modification date	Date (and time, if applicable and known) of the device revision if replacement or modification occurred	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
C14119	Psychological/neuropsychological previous testing indicator	Whether previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
C14505	Device implanted voltage value	The electrical voltage as set in the implanted device (strength of the electric current)	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
C18937	Muscle strength abnormality assessment other text	The free-text field related to 'Muscle strength abnormality assessment type' specifying other text. The muscle strength abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C09607	Brief Psychiatric Rating Scale (BPRS) - disorientation score	The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C14446	Muscle strength assessment anatomic site	Anatomic location of the muscle strength as part of the motor examination	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C19513	Seizure or epilepsy medication patient reception indicator	Indicator for the patient's reception of medication for seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C18559	Device implanted serious adverse effect modification description text	The reason for modification of original parameters or original electrode configuration of implanted device due to serious device adverse effect(s) specification	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
C14513	Device implanted negative electrode location text	The location of negative electrodes from the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
C18945	Reflex plantar right response other text	The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Epilepsy	Epilepsy
C14455	Cerebellar or coordination assessment abnormality present status	Whether the cerebellar/coordination assessment found abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C14414	Medication plasma concentration last dose value	Amount of last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
C13973	Imaging epilepsy-specific protocol indicator	The protocol pertains to epilepsy	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
C14601	EEG view type	The view or side of the participant/subject in the electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C19073	EEG ictal onset periodic discharge pattern other text	The free-text field related to 'Electroencephalography ictal onset periodic discharge pattern type' specifying other text. The periodic discharge wave pattern of the brain on electroencephalogram (EEG) during onset of ictal discharge	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C14561	EEG interictal abnormality date and time	Date (and time, if applicable and known) of the inter-Ictal abnormality recorded by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
C18949	Sensory system modalities affected other text	The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C14628	Medication plasma concentration result unit of measure UCUM code	The Unified Code for Units of Measure (UCUM) code that represents the unit of measure for the drug plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
C14041	Imaging neoplasm status type	Status type of Neoplasm	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
C14609	EEG ictal eye sign laterality type	The location of eye sign from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

Displaying 176 - 200 of 883

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.