CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1360
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C53948 California Verbal Learning Test Childrens version (CVLT-C) - Misses total number

Total number of misses in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Epilepsy Epilepsy
C13303 Longitudinal Interval Follow-Up Evaluation (LIFE) - manic episode indicator

Manic episode indicator, using the Longitudinal Interval Follow Up Evaluation (LIFE)

 Supplemental Longitudinal Interval Follow-Up Evaluation DSM-IV VERSION (LIFE DSM-IV) True Epilepsy Epilepsy
C51797 Adaptive Behavior Assessment System III (ABAS III) - Use print internet information scale

Scale related to the adult using printed or internet resources to obtain information before making major purchase, as part of the Adaptive Behavior Assessment System III (ABAS III)

 Supplemental Adaptive Behavior Assessment Scale (ABAS-II) True Epilepsy Epilepsy
C13135 Hague Side Effects Scale (HASES) - decreased concentration scale

The reported level of severity of decreased concentration noticed by a guardian following administration of antiepileptic medication in a participant/subject during the past 3 months according to Hague Side Effects Scale (HASES)

 Supplemental Hague Side Effects Scale True Epilepsy Epilepsy
C53908 California Verbal Learning Test Childrens version (CVLT-C) - List B items text

Text that lists all List B items in the order they appear on the CRF , as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Epilepsy Epilepsy
C13114 Checklist for Autism in Toddlers (CHAT) - point index finger light indicator

The indicator if child uses index finger to point at light as directed. This is from the Checklist for Autism in Toddlers (CHAT) which is a screening instrument which identifies children aged 18 months who are at risk of having social-communication disorders

 Supplemental Checklist for Autism in Toddlers (CHAT) True Epilepsy Epilepsy
C53193 Controlled Oral Word Association Test (COWAT) - Lexical Fluency Total Score

Total score related to lexical fluency, as a part of the Controlled Oral Word Association Test (COWAT)

 Supplemental Controlled Oral Word Association Test (COWAT) subtest of the Multilingual Aphasia Examination (MAE) True Epilepsy Epilepsy
C14521 Device lead type

Type of insulated wires (leads) for the device implanted

 Supplemental Devices Log False Epilepsy Epilepsy
C18966 EEG activating procedures used other text

The free-text field related to 'EEG activating procedures used type' specifying other text. Type(s) of procedures used to improve the electroencephalogram (EEG) diagnostic yield by inducing or enhancing epileptogenic paroxysms

 Supplemental Short Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C14578 EEG ictal evaluation total seizure count

The total number of seizures recorded during electroencephalography (EEG)

 Supplemental Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

 Supplemental Non Anti Epileptic Medication Log False Epilepsy Epilepsy
C14445 Muscle tone assessment abnormality type

The muscle tone abnormality type

 Supplemental Neurological Exam False Epilepsy Epilepsy
C13995 PET localization rating type

Localization rating indicator of imaging using positron emission tomography (PET)

 Supplemental Positron Emission Tomography (PET) Localization False Epilepsy Epilepsy
C21827 Beck Anxiety Inventory (BAI) - Fear die bother scale

Scale that represents how much the participant has been bothered by the fear of dying as part of the Beck Anxiety Inventory (BAI)

 Supplemental Beck Anxiety Inventory (BAI) True Epilepsy Epilepsy
C53916 California Verbal Learning Test Childrens version (CVLT-C) - List A, trial total perseverations count

Total count of perseverations recited by the subject for List A for a given trial (Total P), as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Epilepsy Epilepsy
C13487 Headache Screening Survey (HSS) - household member suffering severe headache identifier number

The numeric identifier for each members of a participant's household who suffer from severe headaches from Headache Screening Survey (HSS) which is a questionnaire that screens for alcohol dependency without it appearing to be the main focus of the instrument

 Supplemental Migraine Headaches Questionnaire 21-Item True Epilepsy Epilepsy
C21482 Rey Auditory Verbal Learning Test (RAVLT) - Word correct recall indicator

The indicator of whether the word from List B was correctly recalled, as part of the Rey Auditory Verbal Learning Test (RAVLT)

 Supplemental Rey Auditory Verbal Learning Test (RAVLT) True Epilepsy Epilepsy
C18559 Device implanted serious adverse effect modification description text

The reason for modification of original parameters or original electrode configuration of implanted device due to serious device adverse effect(s) specification

 Supplemental Devices Log False Epilepsy Epilepsy
C20449 Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 2 T-score

T-score for Trial 2 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) True Epilepsy Epilepsy
C14586 EEG full ictal propagation localized focal electrical field type

Electrode points at which there was ictal propagation of discharge on electroencephalogram (EEG).

 Supplemental Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C13088 American National Adult Reading Test (AmNART) - pronounce zealot indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "zealot"

 Supplemental American National Adult Reading Test (AmNART) True Epilepsy Epilepsy
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Non Anti Epileptic Medication Log False Epilepsy Epilepsy
C14454 Cerebellar or coordination assessment type

Type of cerebellar/coordination assessment performed

 Supplemental Neurological Exam False Epilepsy Epilepsy
C05463 EEG monitoring type

Type of electroencephalogram (EEG) monitoring

 Supplemental Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C18952 Epilepsy syndrome childhood onset other text

The free-text field related to 'Epilepsy syndrome childhood onset type' specifying other text. Common epilepsy syndromes for children, 2-12 years of age

 Supplemental Syndromes by Age of Onset False Epilepsy Epilepsy
Displaying 176 - 200 of 1360

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.