CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C14527	Device discontinuation reason	The reason the subject discontinued use of the device	Supplemental	Devices Log	False	Epilepsy	Epilepsy
C18941	Tremor other text	The free-text field related to 'Tremor type' specifying other text. The type of tremor detected during the exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C14583	EEG ictal onset location type	The location on electroencephalogram (EEG) for ictal onset	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C18926	Surgery post-operative medical complication other text	The free-text field related to 'Surgery post-operative medical complication type' specifying other text. The type of event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental	Surgery and Pathology	False	Epilepsy	Epilepsy
C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C14451	Muscle weakness neurological anatomic site	Anatomic location of neurological muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C17431	EEG focal sharp waves indicator	The yes/no indicator for electroencephalography (EEG) focal sharp waves	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C58588	Seizure focal impaired awareness present status	The status indicating the degree to which a focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
C18948	Sensory system abnormality anatomic other text	The free-text field related to 'Sensory system abnormality anatomic site' specifying other text. The location of abnormality for sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C59594	Imaging abnormality cortical identification code	Code related to identification of cortical abnormalities	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
C21496	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest item score	Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C14496	Medication anti-epileptic drug three months therapy without discontinuation indicator	Indicator as to whether the duration of therapy exceeded 3 months without discontinuation due to adverse events	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C13991	Imaging ictal single-photon emission computed tomography localization distribution pattern type	Distribution pattern of tracer binding/uptake based on Ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
C18973	EEG full ictal propagation location other text	The free-text field related to 'EEG full ictal propagation location type' specifying other text. The location on electroencephalogram (EEG) for full ictal propagation	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C58596	Seizure focal onset tonic present status	The status indicating the degree to which a focal onset tonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
C01522	Height measurement	Measurement of participant's/subject's height	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
C09595	Brief Psychiatric Rating Scale (BPRS) - tension score	The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C59602	Imaging hippocampal sclerosis type	Type of specific hippocampal sclerosis abnormality of diagnostic conclusion drawn from scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
C21504	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest item score	Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C18545	Medication anti-epileptic drug log line number	The referenced line number of an entry on the anti-epileptic drug (AED) log	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C13983	Imaging magnetoencephalography spontaneous acquisition sampling frequency	The number of samples per second (or per other unit) taken from a continuous signal to make a discrete signal using spontaneous acquisition	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
C18981	EEG ictal face sign other text	The free-text field related to 'EEG ictal face sign type' specifying other text. The face sign type from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
C09603	Brief Psychiatric Rating Scale (BPRS) - uncooperativeness score	The score of the participant's/subject's uncooperativeness, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C14419	Medication plasma concentration result unit of measure	Unit of measure used for the drug plasma concentration	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy

Displaying 151 - 175 of 883

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.