CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

1219 results.
Operations
Selected 19 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C13205 Generalized Anxiety Disorder (GAD-7) - feeling nervous scale

Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14138 Seizure daily diary seizure type count

The number of seizures of the particular seizure type that the participant/subject experienced on the corresponding date

Supplemental-Highly Recommended Seizure Diary Epilepsy Epilepsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Epilepsy Epilepsy
C14481 Epilepsy syndrome distinctive constellation type

Syndromes with distinctive constellations, diagnostically meaningful forms of epilepsy and may have implications for clinical treatment, particularly surgery.

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C58599 Seizure epilepsy generalized classification type

The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject.

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C14426 Epilepsy etiology primary type

Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible).

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C13212 Generalized Anxiety Disorder (GAD-7) - total score

Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14134 Data valid through date and time

Date (and time, if applicable and known) the data collected are valid through

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C13206 Generalized Anxiety Disorder (GAD-7) - not stop worry scale

Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14139 Seizure diary completer type

The type of person recording the diary data

Supplemental-Highly Recommended Seizure Diary Epilepsy Epilepsy
C14427 Epilepsy etiology secondary type

Secondary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible).

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14470 Epilepsy syndrome likelihood present type

Certainty of whether the participant/subject has or had the epilepsy syndrome for the particular age period

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14485 Epilepsy syndromes distinct confidence level type

Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14471 Epilepsy syndrome neonatal onset type

Common epilepsy syndromes with onset in the neonatal period (

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C58582 Genetic presumed genetic epilepsy etiology type

The categorization for genetic or presumed genetic etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C14472 Epilepsy syndrome age of onset type

Age period during which the epilepsy syndrome first appeared

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
1219 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.