CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 76 - 100 of 1219

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C14364	Pathology temporal lobectomy temporal lobe finding text	The decription of damage or cellular abnormality found in tissue from the temporal lobe of the brain removed during a temporal lobectomy procedure	Supplemental	Surgery and Pathology	False	Epilepsy	Epilepsy
C14413	Medication plasma concentration medication name	Generic or brand name of the medication for which the plasma concentration is measured	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
C14429	Global change since prior examination result	Global assessment of the difference between the prior and follow-up examinations	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C13985	Imaging magnetoencephalography evoked field acquisition epoch number	Magnetoencephalography (MEG) acquisition evoked field epoch number	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
C21829	Beck Anxiety Inventory (BAI) - Fear lose control bother scale	Scale that represents how much the participant has been bothered by fear of losing control as part of the Beck Anxiety Inventory (BAI)	Supplemental	Beck Anxiety Inventory (BAI)	True	Epilepsy	Epilepsy
C53917	California Verbal Learning Test Childrens version (CVLT-C) - List A semantic cluster total score	Total score for List A semantic cluster, as part of California Verbal Learning Test Children's version (CVLT-C).	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Epilepsy	Epilepsy
C14610	EEG ictal eye sign sequence identifier	Numerical value representing subject's responsiveness through eye movement from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C18515	Sensory system abnormality sensory nerve present text	The free-text field to describe the sensory nerve abnormality.	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C55956	California Verbal Learning Test - Second Edition (CVLT-II) - Cued recall trial intrusion total standard score	Total intrusions standard score for cued recall trials, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C18904	Seizure diary completer other text	The free-text field related to 'Seizure diary completer type' specifying other text. The type of person recording the diary data	Supplemental	Seizure Diary	False	Epilepsy	Epilepsy
C19509	Pre traumatic brain injury seizure or epilepsy indicator	Indicator for seizures or epilepsy that the patient had prior to the traumatic brain injury	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C13051	Adult ADHD Self-Report Scale (ASRS) - difficulty organizing frequency	The frequency assessment for diffculty getting things in order when you have to do a task that requires organization related to question in the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD.	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C55910	California Verbal Learning Test - Second Edition (CVLT-II) - Long delay free recall start time	Time at the start of the long delay free recall portion, as part of California Verbal Learning Test- Second Edition (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C14331	Surgery multi-lobar resection lobe indicator	Indicator for whether tissue was removed from a specific lobe during surgery to remove tissue from multiple regions of the brain	Supplemental	Surgery and Pathology	False	Epilepsy	Epilepsy
C13319	Longitudinal Interval Follow-Up Evaluation (LIFE) - undifferentiated somatoform disorder indicator	Undifferentiated somatoform disorder indicator, using the Longitudinal Interval Follow Up Evaluation (LIFE)	Supplemental	Longitudinal Interval Follow-Up Evaluation DSM-IV VERSION (LIFE DSM-IV)	True	Epilepsy	Epilepsy
C20436	Beck Depression Inventory II (BDI-II) - Sleep pattern change scale	Scale identifying level of change in sleep pattern, as part of the Beck Depression Inventory II (BDI-II).	Supplemental	Beck Depression Inventory II (BDI-II)	True	Epilepsy	Epilepsy
C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication.	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C13260	Veterans Affairs Toxicity Scale - hypersensitivity score	Pre-specified scores for two degrees of hypersensitivity reaction: transient (stopped with treatment) or severe (did not stop with treatment)	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13967	Imaging domain tested type	Cognitive Area or brain function tested during scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
C18955	Device implanted other text	The free-text field related to 'Device implanted type' specifying other text. The type of device used	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
C07435	Patient Health Questionnaire (PHQ) - Abnormal diet score	Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ).	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Epilepsy	Epilepsy
C14618	EEG ictal other sign type	Other forms of response behavior that have not been covered previously	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C18936	Muscle tone assessment abnormality other text	The free-text field related to 'Muscle tone assessment abnormality type' specifying other text. The muscle tone abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C13059	American National Adult Reading Test (AmNART) - pronounce capon indicator	American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "capon".	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C55918	California Verbal Learning Test - Second Edition (CVLT-II) - Recall discriminability score	Recall discriminability score, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.