CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14303	C14303	Surgery anterior temporal lobectomy amygdala resection estimated percentage value	The estimated percentage of tissue resected from the total volume of tissue in the amygdala during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59545	C59545	Surgery stereotactic lesion perform anatomic site	Anatomic location(s) in the brain where stereotactic lesioning surgical procedure is performed	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14369	C14369	Pathology temporal lobectomy hippocampus finding type	The type of damage or cellular abnormality found in tissue from the hippocampus removed during a temporal lobectomy procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59505	C59505	Surgery neocortical resection insula laterality type	Laterality type relative to the insula area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14311	C14311	Surgery amygdalohippocampectomy parahippocampal estimated length value	The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59553	C59553	Surgery stereotactic lesion central cortex laterality type	Laterality type relative to the central cortex area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14377	C14377	Surgery post-operative seizure count	The value counting the number of seizure events that the participant/subject experienced within 30 days after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59513	C59513	Surgery multi-lobar temporal lobe resection percent estimate remove type	Type of estimated percentage relative to temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14320	C14320	Surgery lesionectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59390	C59390	Surgery diagnostic electrode subdural other laterality type	Laterality type relative to diagnostic subdural electrodes on a surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1102-C58604	C58604	Seizure unclassified classification status	The element related to the degree to which unclassified seizures are present	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C59483	C59483	Surgery lesionectomy suspect lesion medial temporal laterality type	Laterality type relative to suspected lesion in the medial temporal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1144-C14138	C14138	Seizure daily diary seizure type count	The number of seizures of the particular seizure type that the participant/subject experienced on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1123-C59414	C59414	Surgery diagnostic electrode epidural insula laterality type	Laterality type relative to surgical diagnostic epidural electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C58605	C58605	Metabolic toxic epilepsy etiology type	The categorization for metabolic toxic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C08039	C08039	Electrode brain count	Count of electrodes introduced in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59433	C59433	Surgery diagnostic electrode foramen ovale parietal laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14475	C14475	Epilepsy syndrome childhood onset type	Common epilepsy syndromes for children, 2-12 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C59576	C59576	Pathology lesionectomy tumor oligodendroglioma grade	Description of a oligodendroglioma tumor based on how abnormal the cancer cells and tissue look under a microscope and how quickly the cancer cells are likely to grow and spread.	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18925	C18925	Pathology lesionectomy infectious or inflammatory finding other text	The free-text field related to 'Pathology lesionectomy infectious or inflammatory finding type' specifying other text. The type of cellular abnormalities arising in conjunction with infection or inflammation that are found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59459	C59459	Surgery diagnostic electrode other location anatomic site other text	The free-text field related to 'Surgery diagnostic electrode other location anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59374	C59374	Surgery diagnostic electrode depth frontal laterality type	Laterality type relative to diagnostic depth electrodes placement in the frontal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59467	C59467	Surgery diagnostic electrode other type other laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59382	C59382	Surgery diagnostic electrode subdural anatomic site other text	The free-text field related to 'Surgery diagnostic electrode subdural anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59475	C59475	Surgery anterior temporal lobectomy plus extended resection medial frontal laterality type	Laterality type relative to resection extended into the medial frontal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.