CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59536	C59536	Surgery multiple subpial transection occipital laterality type	Laterality type relative to the occipital area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14360	C14360	Therapeutic brain stimulation pulse stimulus type	The type of stimulus pulses applied during therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59496	C59496	Surgery lesionectomy plus resection size estimate type	Type of tissue size estimation relative to tissue resectioned beyond in a lesionectomy plus surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14485	C14485	Epilepsy syndromes distinct confidence level type	Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14302	C14302	Surgery anterior temporal lobectomy parahippocampal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59544	C59544	Surgery stereotactic lesion method type	Type of method used for stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14368	C14368	Surgery stereotaxis type	The type of medical device used during a surgical procedure to permits precise measurement in locating small targets inside the body using a three-dimensional coordinate system	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59504	C59504	Surgery neocortical resection central cortex laterality type	Laterality type relative to the central cortex area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14310	C14310	Surgery anterior temporal lobectomy plus extended resection anatomic site	The anatomic location(s) where tissue resection extended into adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59552	C59552	Surgery stereotactic lesion medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14376	C14376	Surgery post-operative seizure indicator	Indicator for whether the participant/subject experienced one or more seizures that occurred within 30 days after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59512	C59512	Surgery multi-lobar temporal lobe resection laterality type	Laterality type relative to temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14319	C14319	Surgery lesionectomy plus largest anterior-posterior extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent anterior-posterior (AP) brain structures that occurred during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59474	C59474	Surgery anterior temporal lobectomy plus extended resection dorsolateral frontal laterality type	Laterality type relative to resection extended into the dorsolateral frontal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59389	C59389	Surgery diagnostic electrode subdural amygdala laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the amygdala area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59482	C59482	Surgery lesionectomy suspect lesion lateral temporal laterality type	Laterality type relative to a suspected lesion in the lateral temporal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1144-C14136	C14136	Seizure daily diary no seizure indicator	The indicator of whether the participant/subject experienced NO seizures on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1123-C59412	C59412	Surgery diagnostic electrode epidural occipital laterality type	Laterality type relative to diagnostic epidural electrodes placement in the occipital area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59431	C59431	Surgery diagnostic electrode foramen ovale temporal laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the temporal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59575	C59575	Pathology lesionectomy tumor mixed glioma grade	Description of a mixed glioma tumor based on how abnormal the cancer cells and tissue look under a microscope and how quickly the cancer cells are likely to grow and spread.	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18924	C18924	Pathology lesionectomy tumor finding other text	The free-text field related to 'Pathology lesionectomy tumor finding type' specifying other text. The type or classification of malignant tumor tissue found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59458	C59458	Surgery diagnostic electrode other location anatomic site	Anatomic location(s) of the brain with surgically implanted diagnostic interhemispheric electrodes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59373	C59373	Surgery diagnostic electrode depth hippocampus laterality type	Laterality type relative to diagnostic depth electrodes placement in the hippocampus area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59466	C59466	Surgery diagnostic electrode other type amygdala laterality type	Laterality type relative to placement of another type of diagnostic electrodes on the amygdala area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.