CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 51 - 75 of 1360

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C53911	California Verbal Learning Test Childrens version (CVLT-C) - List A item response order number	List A item response number, as part of California Verbal Learning Test Children's version (CVLT-C). Blso used as a trial/list raw score	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Epilepsy	Epilepsy
C01522	Height measurement	Measurement of participant's/subject's height	Supplemental	Migraine Headaches Questionnaire 21-Item	True	Epilepsy	Epilepsy
C21477	Rey Auditory Verbal Learning Test (RAVLT) - Correct recall trial A1-5 total count	Total number of words from List A correctly recalled during Trials A1-5 as part of Rey Auditory Verbal Learning Test (RAVLT)	Supplemental	Rey Auditory Verbal Learning Test (RAVLT)	True	Epilepsy	Epilepsy
C14524	Device permanent explant date	Date the device was removed from the subject	Supplemental	Devices Log	False	Epilepsy	Epilepsy
C20443	Brief Visuospatial Memory Test - Revised (BVMT-R) - Form administered number	Number of form administered for the Brief Visuospatial Memory Test - Revised (BVMT-R)	Supplemental	Brief Visuospatial Memory Test Revised (BVMT-R)	True	Epilepsy	Epilepsy
C14581	EEG ictal evaluation onset date	Date (and time, if applicable and known) of the ictal onset by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C13083	American National Adult Reading Test (AmNART) - pronounce superfluous indicator	American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "superfluous"	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C13998	PET localization cortical anatomic site	The cortical anatomical site of tracer binding/uptake based on positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
C21831	Beck Anxiety Inventory (BAI) - Feel hot bother scale	Scale that represents how much the participant has been bothered by feeling hot as part of the Beck Anxiety Inventory (BAI)	Supplemental	Beck Anxiety Inventory (BAI)	True	Epilepsy	Epilepsy
C11061	Gait assessment result	Result of the gait assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C53919	California Verbal Learning Test Childrens version (CVLT-C) - Serial position recall region type	Type of region (primacy region, middle region, or recency region), as part of California Verbal Learning Test Children's version (CVLT-C)	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Epilepsy	Epilepsy
C13490	Headache Screening Survey (HSS) - household member headache symptom type	The types of headache symptoms experience by each members of a participant's household who suffer from severe headaches from Headache Screening Survey (HSS) which is a questionnaire that screens for alcohol dependency without it appearing to be the main focus of the instrument	Supplemental	Migraine Headaches Questionnaire 21-Item	True	Epilepsy	Epilepsy
C52957	Hopkins Verbal Learning Test Revised (HVLT-R) - Delayed recall raw score	The raw score for Delayed Recall, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)	Supplemental	Hopkins Verbal Learning Test - Revised (HVLT-R)	True	Epilepsy	Epilepsy
C18956	Device stimulation target anatomic other text	The free-text field related to 'Device stimulation target anatomic site' specifying other text. The target of stimulation the device acts upon (where the device lead is located)	Supplemental	Devices Log	False	Epilepsy	Epilepsy
C02303	Adverse event outcome status	Final status of the participant/subject related to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C58607	Seizure epilepsy generalized subtype status	The element related to the degree to which a generalized seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
C20453	Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 3 T-score	Value of T-score for Trial 3 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)	Supplemental	Brief Visuospatial Memory Test Revised (BVMT-R)	True	Epilepsy	Epilepsy
C14589	EEG ictal onset hemispheric type	The hemispheric side for ictal onset from electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C13091	American National Adult Reading Test (AmNART) - pronounce abstemious indicator	American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "abstemious"	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C18553	Medication non-anti-epileptic drug prior or concomitant use day count	The numeric count of days a non-anti-epileptic drug (NAED) was taken before or during a study	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C14549	EEG location type	The location of where the electroencephalogram (EEG) took place	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C21855	Beck Anxiety Inventory (BAI) - Feel shaky bother scale	Scale that represents how much the participant has been bothered by feeling shaky as part of the Beck Anxiety Inventory (BAI)	Supplemental	Beck Anxiety Inventory (BAI)	True	Epilepsy	Epilepsy
C14437	Motor exam global assessment type	Type of global assessment for the motor exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C53927	California Verbal Learning Test Childrens version (CVLT-C) - List B, trial total perseverations count	Total count of perseverations recited by the subject for List B for a given trial (Total P), as part of California Verbal Learning Test Children's version (CVLT-C)	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.