CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Vital Signs Epilepsy Epilepsy
C14453 Tremor type

The type of tremor detected during the exam

Supplemental Neurological Exam Epilepsy Epilepsy
C18567 Device implanted left extension revision component type

The modification of the left extension component including explant, replacement, and repositioning

Supplemental Device Revision/Replacement Log Epilepsy Epilepsy
C14117 School repeat grade indicator

Whether the participant/subject ever repeated a grade in school

Supplemental Neuropsychological Testing Background Information Epilepsy Epilepsy
C14515 Device implanted type

The type of device used

Supplemental Implanted Devices Log Epilepsy Epilepsy
C58602 Seizure epilepsy unknown onset subtype status

The element related to the degree to which a seizure of unknown onset is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C14618 EEG ictal other sign type

Other forms of response behavior that have not been covered previously

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C14578 EEG ictal evaluation total seizure count

The total number of seizures recorded during electroencephalography (EEG)

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance Imaging (MRI) Epilepsy Epilepsy
C18547 Medication anti-epileptic drug plasma concentration log comment text

The free-text field to specify comments regarding the anti-epileptic drug (AED) plasma concentration log

Supplemental AED Plasma Concentration Epilepsy Epilepsy
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C18535 Focal and generalized slowing no local onset description text

The free-text field to describe the nonlocalized onset of focal and generalized slowing

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C14586 EEG full ictal propagation localized focal electrical field type

Electrode points at which there was ictal propagation of discharge on electroencephalogram (EEG).

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C13980 Imaging specific abnormality impression type

Diagnostic conclusion drawn from scan

Supplemental Magnetic Resonance Imaging (MRI) Epilepsy Epilepsy
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Supplemental Non Anti Epileptic Medication Log Epilepsy Epilepsy
C05463 EEG monitoring type

Type of electroencephalogram (EEG) monitoring

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C21485 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest item number

Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Epilepsy Epilepsy
C18537 Medication discontinuation dose related side effect text

The free-text field to specify the dose-related side effect that resulted in a discontinuation of medication

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C18962 EEG data original purpose other text

The free-text field related to 'EEG data original purpose type' specifying other text. The reason(s) for gathering data via electroencephalogram (EEG) method

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C14594 EEG video seizure number

The video seizure number in the order they occurred on electroencephalogram (EEG)

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C59591 Imaging normality status

Status of the result of the imaging scan

Supplemental Magnetic Resonance Imaging (MRI) Epilepsy Epilepsy
C14554 EEG posterior dominant rhythm frequency

The frequency of posterior dominant rhythm during relaxed wakefulness (Hz) during electroencephalography (EEG)

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C21493 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest item number

Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Epilepsy Epilepsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.