CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1116-C18537	C18537	Medication discontinuation dose related side effect text	The free-text field to specify the dose-related side effect that resulted in a discontinuation of medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1115-C18962	C18962	EEG data original purpose other text	The free-text field related to 'EEG data original purpose type' specifying other text. The reason(s) for gathering data via electroencephalogram (EEG) method	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C14463	C14463	Reflex plantar left response result	The results from reflex plantar response on the left side	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1114-C13996	C13996	PET localization uptake type	Indicates the degree of absorption or level of ligand tracer binding in the brain scan	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1806-C19505	C19505	Family member mental state awareness level unexplained change indicator	Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1105-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1109-C18519	C18519	Imaging temporal brain area language type	Imaging location on temporal brain area for language	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1104-C18953	C18953	Epilepsy syndrome adolescence adult onset other text	The free-text field related to 'Epilepsy syndrome adolescence adult onset type' specifying other text. Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1143-C14119	C14119	Psychological/neuropsychological previous testing indicator	Whether previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1117-C08223	C08223	Medication prior or concomitant discontinuation reason	Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1102-C58590	C58590	Seizure focal impaired awareness non-motor present status	The status indicating the degree to which a non-motor focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1115-C18970	C18970	EEG interictal circumstance other text	The free-text field related to 'EEG interictal circumstance type' specifying other text. State subject is in during interictal electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C18506	C18506	Muscle weakness myopathic weakness present text	The free-text field to describethe myopathic weakness present resultling in muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1806-C19513	C19513	Seizure or epilepsy medication patient reception indicator	Indicator for the patient's reception of medication for seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1106-C11026	C11026	Neuromuscular Exam Muscle weakness indicator	Indicator whether there is muscle weakness in the muscle or muscle group examined	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1110-C08258	C08258	Imaging radioligand type	Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1106-C21106	C21106	Gait assessment result other text	The free-text field to specify the other result of the gait assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1117-C18542	C18542	Responses all known indicator	The yes/no indicator where all the answers on the form were known	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1102-C58598	C58598	Seizure focal onset epileptic spasm present status	The status indicating the degree to which a focal onset epileptic spasm seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1115-C18978	C18978	EEG vocalization other text	The free-text field related to 'EEG vocalization type' specifying other text. Method of articulation during electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F0803-C09597	C09597	Brief Psychiatric Rating Scale (BPRS) - grandiosity score	The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1106-C18514	C18514	Sensory system abnormality participant description text	The free-text field to capture the participant's description of the sensory abnormality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14436	C14436	Nystagmus type	Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1110-C13993	C13993	Imaging ictal single-photon emission computed tomography localization study conclusion status	The Ictal single-photon emission computed tomography (SPECT) localization study conclusion	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1441-C14559	C14559	EEG recording start date and time	Date (and time, if applicable and known) the electroencephalogram (EEG) recording began	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.