CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 883

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1115-C18980	C18980	EEG ictal subjective symptoms reported other text	The free-text field related to 'EEG ictal subjective symptoms reported type' specifying other text. Symptoms reported by the participant from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14608	C14608	EEG ictal eye sign type	The indicated eye sign type from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1118-C14418	C14418	Medication plasma concentration result	Measurement of the concentration of the drug in the blood plasma	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1115-C14568	C14568	EEG interictal discharge rhythmic frequency	Complex of waves that can be measured in hertz (Hz) using electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1116-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1115-C14616	C14616	EEG ictal trunk or limb sign laterality type	The side of the trunk or specific limbs that are dominant in the responsive behavior	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F3064-C13973	C13973	Imaging epilepsy-specific protocol indicator	The protocol pertains to epilepsy	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1119-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1115-C14576	C14576	EEG focal and generalized slowing hemispheric type	The hemispheric side for location of focal and generalized slowing based on electroencephalography (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1116-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1115-C18533	C18533	Electroencephalography ictal onset periodic discharge pattern type	The periodic discharge wave pattern of the brain on electroencephalogram (EEG) during onset of ictal discharge	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F3064-C14041	C14041	Imaging neoplasm status type	Status type of Neoplasm	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1115-C14584	C14584	EEG full ictal propagation location type	The location on electroencephalogram (EEG) for full ictal propagation	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1953-C21487	C21487	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial score	Score for the digit span forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1116-C18539	C18539	Medication generic or brand type	The identification of the medication label or manufacture as being either a brand name product or generic product	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1441-C17431	C17431	EEG focal sharp waves indicator	The yes/no indicator for electroencephalography (EEG) focal sharp waves	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1110-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1121-C18958	C18958	Device neurostimulator anatomic other text	The free-text field related to 'Device neurostimulator anatomic site' specifying other text. The location in the body of where the device is providing electrical stimulation	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1126-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1106-C14461	C14461	Reflex assessment limb result	The results from reflex limb assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18949	C18949	Sensory system modalities affected other text	The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1100-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F1120-C14502	C14502	Device start date and time	Date (and time, if applicable and known) the device was functional and therapy was started with the parameters specified	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1105-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1441-C17439	C17439	EEG other abnormalities text	The free text field to specify other electroencephalography (EEG) abnormalities	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.