CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1219
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C13321 Longitudinal Interval Follow-Up Evaluation (LIFE) - hypochondriasis indicator

Hypochondriasis indicator, using the Longitudinal Interval Follow Up Evaluation (LIFE)

 Supplemental Longitudinal Interval Follow-Up Evaluation DSM-IV VERSION (LIFE DSM-IV) True Epilepsy Epilepsy
C21853 Beck Anxiety Inventory (BAI) - Feel scared bother scale

Scale that represents how much the participant has been bothered by feeling scared as part of the Beck Anxiety Inventory (BAI)

 Supplemental Beck Anxiety Inventory (BAI) True Epilepsy Epilepsy
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered.

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C13262 Veterans Affairs Toxicity Scale - impotence score

Pre-specified scores based on the severity of impotence: transient, occassional or tolerable; continuous or intolerable

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13970 Brain region of interest type

Region of interest in the brain

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Epilepsy Epilepsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Surgery and Pathology False Epilepsy Epilepsy
C14620 EEG benign variants indicator

Variants in electroencephalogram (EEG) that are benign

 Supplemental Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C18938 Muscle weakness brain pattern other text

The free-text field related to 'Muscle weakness brain pattern type' specifying other text. Patterns describing weakness in location of brain

 Supplemental Neurological Exam False Epilepsy Epilepsy
C13061 American National Adult Reading Test (AmNART) - pronounce chord indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "chord".

 Supplemental American National Adult Reading Test (AmNART) True Epilepsy Epilepsy
C55920 California Verbal Learning Test - Second Edition (CVLT - II) - Cued recall animal correct word count

Number of correct words recited by the subject from List A that belong to the category animals , as part of California Verbal Learning Test- Second Edition (CVLT-II).

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Epilepsy Epilepsy
C14343 Surgery radiosurgery lobe location text

Text describing the lobe of the brain or anatomic location of radiosurgery, a medical procedure that allows non-invasive treatment of benign and malignant tumors

 Supplemental Surgery and Pathology False Epilepsy Epilepsy
C13329 Longitudinal Interval Follow-Up Evaluation (LIFE) - other psychiatric disorder indicator

Other psychiatric disorder indicator, using the Longitudinal Interval Follow Up Evaluation (LIFE)

 Supplemental Longitudinal Interval Follow-Up Evaluation DSM-IV VERSION (LIFE DSM-IV) True Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) True Epilepsy Epilepsy
C18538 Medication discontinuation idiosyncratic side effect text

The free-text field to specify the idiosyncratic side effect that resulted in a discontinuation of medication

 Supplemental Anti Epileptic Drug (AED) Log False Epilepsy Epilepsy
C13271 Veterans Affairs Toxicity Scale - hair quantity/texture indicator

Indicate whether or not patient has any changes in hair quantity or texture since starting drug

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C53934 California Verbal Learning Test Childrens version (CVLT-C) - List A Long-Delay Recognition Trial item response text

Text that captures- List A Long-Delay Recognition Trial item responce given by the subject as a single word, as part of California Verbal Learning Test Children's version (CVLT-C).

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Epilepsy Epilepsy
C18894 Imaging functional magnetic resonance imaging analysis other text

The free-text field related to 'Imaging functional magnetic resonance imaging analysis type' specifying other text. Types of functional magnetic resonance imaging (fMRI) analytic methods

 Supplemental Functional Magnetic Resonance Imaging (fMRI) False Epilepsy Epilepsy
C14301 Surgery anterior temporal lobectomy inferior temporal gyrus resection estimated length value

The estimated length of tissue (in cm) resected from the inferior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure.

 Supplemental Surgery and Pathology False Epilepsy Epilepsy
C13505 Headache Screening Survey (HSS) - severe headaches treatment type

The types of ways that usually treat severe headache from Headache Screening Survey (HSS) which is a questionnaire that screens for alcohol dependency without it appearing to be the main focus of the instrument.

 Supplemental Migraine Headaches Questionnaire 21-Item True Epilepsy Epilepsy
C18963 EEG prolonged duration other text

The free-text field related to 'EEG prolonged duration type' specifying other text. The length of time for the prolonged electroencephalogram (EEG)

 Supplemental Scalp Electroencephalography (EEG) False Epilepsy Epilepsy
C13121 Hague Side Effects Scale (HASES) - sickness scale

The reported level of severity of sickness noticed by a guardian following administration of antiepileptic medication in a participant/subject during the past 3 months according to Hague Side Effects Scale (HASES).

 Supplemental Hague Side Effects Scale True Epilepsy Epilepsy
C18946 Reflex plantar left response other text

The free-text field related to 'Reflex plantar left response result' specifying other text. The results from reflex plantar response on the left side

 Supplemental Neurological Exam False Epilepsy Epilepsy
C21488 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest item score

Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False Epilepsy Epilepsy
C55928 California Verbal Learning Test - Second Edition (CVLT - II) - Free recall intrusion raw score

Raw score for free recall intrusions of immediate and delayed trials, as part of the California Verbal Learning Test (CVLT-II).

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Epilepsy Epilepsy
C17656 Longitudinal Interval Follow-Up Evaluation (LIFE) - time of evaluation status

Status of the subject at the time of the Longitudinal Interval Follow-Up Evaluation (LIFE)

 Supplemental Longitudinal Interval Follow-Up Evaluation DSM-IV VERSION (LIFE DSM-IV) True Epilepsy Epilepsy
Displaying 26 - 50 of 1219

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.