CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 883

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1117-C18541	C18541	Medication anti-epileptic drug name	Name of the prior or concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1126-C02311	C02311	Adverse event MedDRA lower level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1115-C18977	C18977	EEG ictal responsiveness level other text	The free-text field related to 'EEG ictal responsiveness level type' specifying other text. The level of responsiveness of the subject as assessed by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1806-C19504	C19504	Family member body uncontrolled movement indicator	Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1118-C14415	C14415	Medication plasma concentration last dose unit of measure	Dosage unit of measure for the last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1143-C14118	C14118	Disability application status	People 5 years old and over are considered to have a disability if they have one or more of the following (a) blindness, deafness, or a severe vision or hearing impairment; (b) a substantial limitation in the ability to perform basic physical activities, such as walking, climbing stairs, reaching, lifting, or carrying; (c) difficulty learning, remembering, or concentrating; or (d)difficulty dressing, bathing, or getting around inside the home	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1106-C14441	C14441	Muscle bulk assessment abnormality indicator	Whether the muscle bulk assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1953-C21492	C21492	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest number series text	Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1111-C13981	C13981	Imaging magnetoencephalography spontaneous brain activity duration	Duration of magnetoencephalography (MEG) a non-invasive diagnostic technique that directly measures the magnetic fields produced by electrical currents in the brain	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1115-C14572	C14572	EEG focal and generalized slowing start date and time	Date (and time, if applicable and known) of the focal and generalized slowing based on electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1107-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1122-C18576	C18576	Device implanted other new component model number	The model number of the other, unspecified new component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1121-C14515	C14515	Device implanted type	The type of device used	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1100-C00024	C00024	Language primary ISO code	Code (ISO 639-2) for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F1106-C18940	C18940	Tremor assessment other text	The free-text field related to 'Tremor assessment status' specifying other text. The status indicating whether tremors could be detected during the exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F3064-C59598	C59598	Imaging abnormality subcortical contrast agent used indicator	Indicator as to whether an imaging contrast agent was used for the subcortical imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1115-C14620	C14620	EEG benign variants indicator	Variants in electroencephalogram (EEG) that are benign	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C14450	C14450	Muscle weakness brain pattern type	Patterns describing weakness in location of brain	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1953-C21500	C21500	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest number series text	Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1111-C14964	C14964	Sedation used indicator	Indicator of whether the participant was administered any sedation	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1115-C14580	C14580	EEG ictal evaluation seizure end date and time	Date (and time, if applicable and known) the seizure ended for the ictal evaluation by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1109-C13962	C13962	Seizure last occurrence date and time	The date and time the last seizure occurred	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1121-C14523	C14523	Device neurostimulator anatomic site	The location in the body of where the device is providing electrical stimulation	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1101-C12607	C12607	Education level maternal USA type	Indicator of the highest level of education completed by the participant/subject's mother	Supplemental	Social Status	False	Epilepsy	Epilepsy
F3064-C59606	C59606	Imaging inflammatory infection type other text	The free-text field related to 'Imaging inflammatory infection type' specifying other text	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.