CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C18529	Imaging positron emission tomography ictal cortical anatomic site	The anatomic side of the cortex examined or affected using Ictal positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
C21847	Beck Anxiety Inventory (BAI) - Heart pound race bother scale	Scale that represents how much the participant has been bothered by heart pounding/racing as part of the Beck Anxiety Inventory (BAI)	Supplemental	Beck Anxiety Inventory (BAI)	True	Epilepsy	Epilepsy
C53921	California Verbal Learning Test Childrens version (CVLT-C) - Serial-Cluster raw score	Serial-Cluster raw score raw score calculated as a number of word pairs recalled in a serial cluster, as part of California Verbal Learning Test Children's version (CVLT-C)	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Epilepsy	Epilepsy
C13492	Headache Screening Survey (HSS) - household member headache occurrence month frequency	The number headaches experienced by each members of a participant's household who suffer from severe headaches in a month	Supplemental	Migraine Headaches Questionnaire 21-Item	True	Epilepsy	Epilepsy
C52959	Hopkins Verbal Learning Test Revised (HVLT-R) - Retention raw percentage value	The percentage value for retention, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)	Supplemental	Hopkins Verbal Learning Test - Revised (HVLT-R)	True	Epilepsy	Epilepsy
C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C14439	Motor exam global assessment abnormality type	Global assessment abnormality type found during the motor exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C20457	Brief Visuospatial Memory Test - Revised (BVMT-R) - Total recall raw score	Raw score for Total Recall portion of Brief Visuospatial Memory Test - Revised (BVMT-R)	Supplemental	Brief Visuospatial Memory Test Revised (BVMT-R)	True	Epilepsy	Epilepsy
C14591	EEG ictal onset pattern type	Brain wave pattern on electroencephalogram (EEG) during onset of Ictal discharge	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C13093	American National Adult Reading Test (AmNART) - pronounce scion indicator	American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "scion"	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C14502	Device start date and time	Date (and time, if applicable and known) the device was functional and therapy was started with the parameters specified	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
C14551	EEG behavioral state recorded type	The recorded state(s) of the subject during the electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C14142	Medication prior or concomitant formulation text	Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C21859	Beck Anxiety Inventory (BAI) - Total score	Total score as part of the Beck Anxiety Inventory (BAI)	Supplemental	Beck Anxiety Inventory (BAI)	True	Epilepsy	Epilepsy
C53929	California Verbal Learning Test Childrens version (CVLT-C) - Cued recall category	Category of a cued recall provided to the subject, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Epilepsy	Epilepsy
C13500	Headache Screening Survey (HSS) - no household work day count	The number of days in the last 3 months that person could not do household work because of headaches from Headache Screening Survey (HSS) which is a questionnaire that screens for alcohol dependency without it appearing to be the main focus of the instrument	Supplemental	Migraine Headaches Questionnaire 21-Item	True	Epilepsy	Epilepsy
C51778	Adaptive Behavior Assessment System III (ABAS III) - Order meal when out scale	Scale related to the adult ordering own meals when eating out, as part of the Adaptive Behavior Assessment System III (ABAS III)	Supplemental	Adaptive Behavior Assessment Scale (ABAS-II)	True	Epilepsy	Epilepsy
C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C14447	Muscle strength abnormality assessment indicator	Whether the muscle strength assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C20467	Brief Visuospatial Memory Test - Revised (BVMT-R) - Delayed recall percentage value	Percentile for Delayed Recall portion of Brief Visuospatial Memory Test - Revised (BVMT-R)	Supplemental	Brief Visuospatial Memory Test Revised (BVMT-R)	True	Epilepsy	Epilepsy
C13101	American National Adult Reading Test (AmNART) - pronounce syncope indicator	American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "syncope"	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C14510	Device implanted positive electrode count	The number of positive electrodes used by the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
C14559	EEG recording start date and time	Date (and time, if applicable and known) the electroencephalogram (EEG) recording began	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C18543	Responses all positive indicator	The yes/no indicator where all the answers on the form were "Yes"	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.