CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C13964	Imaging complicating factor type	Factors that may hinder proper data acquisition and interpretation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
C58607	Seizure epilepsy generalized subtype status	The element related to the degree to which a generalized seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
C09604	Brief Psychiatric Rating Scale (BPRS) - unusual thought content score	The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C13976	Imaging abnormality distribution type	Location(s) of abnormality	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C13995	PET localization rating type	Localization rating indicator of imaging using positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Epilepsy	Epilepsy
C08223	Medication prior or concomitant discontinuation reason	Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C18518	Brain laterality type	Brain laterality of interest	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
C14043	Imaging atrophy tissue loss type	Type of atrophy or tissue loss for which the assessment is being completed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
C21489	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest last trial correct digit score	Score for the digits reported correctly by the subject/participant during the last trial of the Digit Span Forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV)	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
C18966	EEG activating procedures used other text	The free-text field related to 'EEG activating procedures used type' specifying other text. Type(s) of procedures used to improve the electroencephalogram (EEG) diagnostic yield by inducing or enhancing epileptogenic paroxysms	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C18949	Sensory system modalities affected other text	The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C59595	Imaging abnormality cortical contrast agent use indicator	Indicator as to whether an imaging contrast agent was used for the cortical imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
C21497	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest last trial correct digit score	Score for correctly recalled digits for the last trial, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C14497	Medication anti-epileptic drug dose adjustment attempt indicator	Indicator as to whether attempts were made to adjust the dose of the anti-epileptic drug (AED) prior to discontinuation	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C13992	Imaging ictal single-photon emission computed tomography localization cortical anatomic site	The cortical location of tracer binding/uptake based on Ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
C18974	EEG ictal onset pattern other text	The free-text field related to 'EEG ictal onset pattern type' specifying other text. Brain wave pattern on electroencephalogram (EEG) during onset of Ictal discharge	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
C18952	Epilepsy syndrome childhood onset other text	The free-text field related to 'Epilepsy syndrome childhood onset type' specifying other text. Common epilepsy syndromes for children, 2-12 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C14512	Device implanted negative electrode count	The number of negative electrodes used by the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
C18506	Muscle weakness myopathic weakness present text	The free-text field to describethe myopathic weakness present resultling in muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C14561	EEG interictal abnormality date and time	Date (and time, if applicable and known) of the inter-Ictal abnormality recorded by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.