CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 883
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core Epilepsy Epilepsy
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core General Core Epilepsy Epilepsy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Epilepsy Epilepsy
C58581 Seizure epilepsy classification type

The type of epileptic seizure(s) the participant/subject experiences

Core Classification of Seizures Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Epilepsy Epilepsy
C58580 Specific epilepsy etiology classification type

The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies

Core Classification of Etiology Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core Demographics Epilepsy Epilepsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core Demographics Epilepsy Epilepsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Epilepsy Epilepsy
C59593 Imaging abnormality description type other text

The free-text field related to 'Imaging abnormality description type', specifying other text.

Supplemental Magnetic Resonance Imaging (MRI) Epilepsy Epilepsy
C21495 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial score

Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Epilepsy Epilepsy
C14495 Medication anti-epileptic drug appropriate indicator

Indicator as to whether the anti-epileptic drug (AED) provided sufficient control for the participant's/subject's epilepsy syndrome

Supplemental AED Resistance Log Epilepsy Epilepsy
C13990 Imaging ictal single-photon emission computed tomography localization uptake status

Describes the status for the level of ligand tracer binding

Supplemental Ictal Single-photon Emission Computed Tomography (SPECT) Localization Epilepsy Epilepsy
C18972 EEG ictal onset location other text

The free-text field related to 'EEG ictal onset location type' specifying other text. The location on electroencephalogram (EEG) for ictal onset

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C58595 Seizure focal onset clonic present status

The status indicating the degree to which a focal onset clonic seizure is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental Vital Signs Epilepsy Epilepsy
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Epilepsy Epilepsy
C59601 Imaging specific abnormality contrast agent use indicator

Indicator as to whether imaging contrast enhancement was used for the specific abnormality imaging scan

Supplemental Magnetic Resonance Imaging (MRI) Epilepsy Epilepsy
C21503 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial score

Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

Supplemental Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) Epilepsy Epilepsy
C18544 Medication anti-epileptic drug formulation indicator

The yes/no indicator for formulation of the prior/concomitant anti-epileptic drug (AED)

Supplemental AED Resistance Log Epilepsy Epilepsy
C13981 Imaging magnetoencephalography spontaneous brain activity duration

Duration of magnetoencephalography (MEG) a non-invasive diagnostic technique that directly measures the magnetic fields produced by electrical currents in the brain

Supplemental Magnetoencephalography (MEG) Acquisition Epilepsy Epilepsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.