CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1100-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Epilepsy	Epilepsy
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Epilepsy	Epilepsy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
F1102-C58581	C58581	Seizure epilepsy classification type	The type of epileptic seizure(s) the participant/subject experiences	Core	Classification of Seizures	False	Epilepsy	Epilepsy
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Epilepsy	Epilepsy
F1103-C58580	C58580	Specific epilepsy etiology classification type	The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies	Core	Classification of Etiology	False	Epilepsy	Epilepsy
F1100-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Epilepsy	Epilepsy
F1100-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Epilepsy	Epilepsy
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Epilepsy	Epilepsy
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Epilepsy	Epilepsy
F1100-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Epilepsy	Epilepsy
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Epilepsy	Epilepsy
F1106-C18939	C18939	Muscle weakness neurological anatomic other text	The free-text field related to 'Muscle weakness neurological anatomic site' specifying other text. Anatomic location of neurological muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F0803-C09605	C09605	Brief Psychiatric Rating Scale (BPRS) - blunted affect score	The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1106-C14448	C14448	Muscle strength abnormality assessment type	The muscle strength abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1118-C14418	C14418	Medication plasma concentration result	Measurement of the concentration of the drug in the blood plasma	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1116-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1106-C18947	C18947	Sensory system global assessment other text	The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14459	C14459	Reflex exam global assessment result	The global assessment of the ability and condition of reflexes	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F3064-C13973	C13973	Imaging epilepsy-specific protocol indicator	The protocol pertains to epilepsy	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1119-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1105-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1116-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1106-C14468	C14468	Sensory system abnormality anatomic site	The location of abnormality for sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.