CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1360
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Epilepsy Epilepsy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Epilepsy Epilepsy
C58581 Seizure epilepsy classification type

The type of epileptic seizure(s) the participant/subject experiences

Core Classification of Seizures Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Epilepsy Epilepsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Epilepsy Epilepsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Epilepsy Epilepsy
C58580 Specific epilepsy etiology classification type

The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies

Core Classification of Etiology Epilepsy Epilepsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Epilepsy Epilepsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Epilepsy Epilepsy
C14452 Tremor assessment status

The status indicating whether tremors could be detected during the exam

Supplemental Neurological Exam Epilepsy Epilepsy
C18530 Imaging positron emission tomography ictal localization study type

Type of imaging study of the brain during a seizure using Ictal positron emission tomography (PET)

Supplemental Positron Emission Tomography (PET) Localization Epilepsy Epilepsy
C18950 Epilepsy syndrome neonatal onset other text

The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C21848 Beck Anxiety Inventory (BAI) - Hot cold sweat bother scale

Scale that represents how much the participant has been bothered by hot/cold sweats as part of the Beck Anxiety Inventory (BAI)

Supplemental Beck Anxiety Inventory (BAI) Epilepsy Epilepsy
C53922 California Verbal Learning Test Childrens version (CVLT-C) - List B item response text

Text that captures List B item response given by the subject as a single word, as part of California Verbal Learning Test Children's version (CVLT-C)

Supplemental California Verbal Learning Test - Children (CVLT-C) Epilepsy Epilepsy
C13493 Headache Screening Survey (HSS) - household member headache occurrence year frequency

The number headaches experienced by each members of a participant's household who suffer from severe headaches in a year from Headache Screening Survey (HSS) which is a questionnaire that screens for alcohol dependency without it appearing to be the main focus of the instrument

Supplemental Migraine Headaches Questionnaire 21-Item Epilepsy Epilepsy
C52960 Hopkins Verbal Learning Test Revised (HVLT-R) - Retention T score percentage value

The percentage value as related to T score for Retention calculated from HVLTRRetentionRawScore, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)

Supplemental Hopkins Verbal Learning Test - Revised (HVLT-R) Epilepsy Epilepsy
C02306 Adverse event start date and time

Date (and time, if applicable and known) on which the adverse event was first evident

Supplemental Adverse Event Tracking Log Epilepsy Epilepsy
C20458 Brief Visuospatial Memory Test - Revised (BVMT-R) - Total recall t-score

T-score for Total Recall portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) Epilepsy Epilepsy
C14592 EEG ictal onset rhythmic frequency

Frequency of brain wave patterns at the onset of Ictal by electroencephalogram (EEG)

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C13094 American National Adult Reading Test (AmNART) - pronounce papyrus indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "papyrus"

Supplemental American National Adult Reading Test (AmNART) Epilepsy Epilepsy
C14503 Device implanted removal date

The date the device no longer provided therapy according to the parameters specified

Supplemental Implanted Devices Log Epilepsy Epilepsy
Displaying 1 - 25 of 1360

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.