CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 883
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58581 Seizure epilepsy classification type

The type of epileptic seizure(s) the participant/subject experiences

Core Classification of Seizures Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Epilepsy Epilepsy
C58580 Specific epilepsy etiology classification type

The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies

Core Classification of Etiology Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Epilepsy Epilepsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Epilepsy Epilepsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Epilepsy Epilepsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Epilepsy Epilepsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Epilepsy Epilepsy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Epilepsy Epilepsy
C14414 Medication plasma concentration last dose value

Amount of last dose taken before the blood draw for the plasma concentration measurement

Supplemental AED Plasma Concentration Epilepsy Epilepsy
C14044 Magnetoencephalography/ electroencephalography source analysis volume conductor type

Possible magnetic noise suppression methods and computational models used for magnetoencephalography (MEG)/EEG analysis

Supplemental Magnetoencephalography (MEG) Acquisition Epilepsy Epilepsy
C19073 EEG ictal onset periodic discharge pattern other text

The free-text field related to 'Electroencephalography ictal onset periodic discharge pattern type' specifying other text. The periodic discharge wave pattern of the brain on electroencephalogram (EEG) during onset of ictal discharge

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Epilepsy Epilepsy
C09606 Brief Psychiatric Rating Scale (BPRS) - excitement score

The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Epilepsy Epilepsy
C14628 Medication plasma concentration result unit of measure UCUM code

The Unified Code for Units of Measure (UCUM) code that represents the unit of measure for the drug plasma concentration measurement

Supplemental AED Plasma Concentration Epilepsy Epilepsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Positron Emission Tomography (PET) Localization Epilepsy Epilepsy
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C13966 Imaging behavioral monitoring indicator

Responses to paradigm items recorded or not

Supplemental Functional Magnetic Resonance Imaging (fMRI) Epilepsy Epilepsy
C18732 Language primary other text

The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often

Supplemental Demographics Epilepsy Epilepsy
C13978 Imaging abnormality subcortical anatomic site

The location(s) of the abnormality below the brain cortex

Supplemental Magnetic Resonance Imaging (MRI) Epilepsy Epilepsy
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Supplemental Non Anti Epileptic Medication Log Epilepsy Epilepsy
Displaying 1 - 25 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.