CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 883
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Epilepsy Epilepsy
C58581 Seizure epilepsy classification type

The type of epileptic seizure(s) the participant/subject experiences

Core Classification of Seizures Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Epilepsy Epilepsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Epilepsy Epilepsy
C58580 Specific epilepsy etiology classification type

The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies

Core Classification of Etiology Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Epilepsy Epilepsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Epilepsy Epilepsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Epilepsy Epilepsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Epilepsy Epilepsy
C17434 EEG other abnormalities indicator

The yes/no indicator for other electroencephalography (EEG) abnormalities

Supplemental Short Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

Supplemental Adverse Event Tracking Log Epilepsy Epilepsy
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C18953 Epilepsy syndrome adolescence adult onset other text

The free-text field related to 'Epilepsy syndrome adolescence adult onset type' specifying other text. Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C08258 Imaging radioligand type

Isotope-labeled bioactive compound (generic or common name) used in the imaging scan

Supplemental Ictal Single-photon Emission Computed Tomography (SPECT) Localization Epilepsy Epilepsy
C18967 EEG interictal epileptiform anatomic other text

The free-text field related to 'EEG interictal epileptiform anatomic site' specifying other text. The anatomic site/location of interictal epileptiform by electroencephalogram (EEG)

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C58590 Seizure focal impaired awareness non-motor present status

The status indicating the degree to which a non-motor focal impaired awareness seizure is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

Supplemental Neurological Exam Epilepsy Epilepsy
C19055 EEG duration other text

The free-text field related to 'EEG duration' specifying other text. The length of time for the Electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C14115 Family history sinistrality indicator

Whether the participant/subject has a family history of sinistrality, or left-handedness/preference for using the left hand

Supplemental Neuropsychological Testing Background Information Epilepsy Epilepsy
C14498 Medication anti-epileptic drug seizure despite adjustment indicator

Indicator as to whether, after adjusting dose of anti-epileptic drug (AED), the subject continued to experienced seizures

Supplemental AED Resistance Log Epilepsy Epilepsy
C13993 Imaging ictal single-photon emission computed tomography localization study conclusion status

The Ictal single-photon emission computed tomography (SPECT) localization study conclusion

Supplemental Ictal Single-photon Emission Computed Tomography (SPECT) Localization Epilepsy Epilepsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.