CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58580	Specific epilepsy etiology classification type	The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies	Core	Classification of Etiology	False	Epilepsy	Epilepsy
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Epilepsy	Epilepsy
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Epilepsy	Epilepsy
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Epilepsy	Epilepsy
C58581	Seizure epilepsy classification type	The type of epileptic seizure(s) the participant/subject experiences	Core	Classification of Seizures	False	Epilepsy	Epilepsy
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Epilepsy	Epilepsy
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Epilepsy	Epilepsy
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Epilepsy	Epilepsy
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Epilepsy	Epilepsy
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Epilepsy	Epilepsy
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Epilepsy	Epilepsy
C14433	Cranial nerves global assessment result	The condition of Cranial Nerves	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C14046	Magnetoencephalography/ electroencephalography source analysis distributed source model type	Method used for magnetoencephalography/electroencephalography (MEG/EEG) signal analysis	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
C54602	Behavior Rating Inventory of Executive Function 2nd Edition (BRIEF 2) - Form version name	Name of the version of the form, as part of the Behavior Rating Inventory of Executive Function 2nd Edition (BRIEF 2)	Supplemental	Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2)	True	Epilepsy	Epilepsy
C53944	California Verbal Learning Test Childrens version (CVLT-C) - Total perseverations for all recalls/trials count	Total count of perseverations for all trials/recalls, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a raw score	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Epilepsy	Epilepsy
C13299	Longitudinal Interval Follow-Up Evaluation (LIFE) - major depressive episode indicator	Major depressive episode indicator, using the Longitudinal Interval Follow Up Evaluation (LIFE)	Supplemental	Longitudinal Interval Follow-Up Evaluation DSM-IV VERSION (LIFE DSM-IV)	True	Epilepsy	Epilepsy
C51793	Adaptive Behavior Assessment System III (ABAS III) - Responsible personal finance scale	Scale related to the adult being responsible for his or her personal finances, such as bank account, credit card, or utility bill, as part of the Adaptive Behavior Assessment System III (ABAS III)	Supplemental	Adaptive Behavior Assessment Scale (ABAS-II)	True	Epilepsy	Epilepsy
C13131	Hague Side Effects Scale (HASES) - hyperactivity scale	The reported level of severity of hyperactivity noticed by a guardian following administration of antiepileptic medication in a participant/subject during the past 3 months according to Hague Side Effects Scale (HASES)	Supplemental	Hague Side Effects Scale	True	Epilepsy	Epilepsy
C20498	Brief Visuospatial Memory Test - Revised (BVMT-R) - Delay interval minute time	Time of delay interval in minutes for Brief Visuospatial Memory Test - Revised (BVMT-R)	Supplemental	Brief Visuospatial Memory Test Revised (BVMT-R)	True	Epilepsy	Epilepsy
C13110	Checklist for Autism in Toddlers (CHAT) - bring objects over show indicator	The indicator if child ever brings objects over to parent to show something. This is from the Checklist for Autism in Toddlers (CHAT) which is a screening instrument which identifies children aged 18 months who are at risk of having social-communication disorders	Supplemental	Checklist for Autism in Toddlers (CHAT)	True	Epilepsy	Epilepsy
C14517	Device manufacturer name	The company responsible for development of the device	Supplemental	Devices Log	False	Epilepsy	Epilepsy
C14574	EEG focal and generalized slowing location type	Location of focal and generalized slowing based on electroencephalography (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C18547	Medication anti-epileptic drug plasma concentration log comment text	The free-text field to specify comments regarding the anti-epileptic drug (AED) plasma concentration log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.