CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1219
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core Demographics Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core General Core Epilepsy Epilepsy
C58580 Specific epilepsy etiology classification type

The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies.

Core Classification of Etiology Epilepsy Epilepsy
C00035 Gender type

Self-reported gender of the participant/subject.

Core Demographics Epilepsy Epilepsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Epilepsy Epilepsy
C58581 Seizure epilepsy classification type

The type of epileptic seizure(s) the participant/subject experiences

Core Classification of Seizures Epilepsy Epilepsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Epilepsy Epilepsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Epilepsy Epilepsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Epilepsy Epilepsy
C18924 Pathology lesionectomy tumor finding other text

The free-text field related to 'Pathology lesionectomy tumor finding type' specifying other text. The type or classification of malignant tumor tissue found during a lesionectomy

Supplemental Surgery and Pathology Epilepsy Epilepsy
C55916 California Verbal Learning Test - Second Edition (CVLT - II) - Trial standard score

Standard score for a given trial, as part of California Verbal Learning Test- Second Edition (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Epilepsy Epilepsy
C14430 Tanner stage

Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair.

Supplemental Physical Exam Epilepsy Epilepsy
C14575 EEG focal and generalized slowing localized regional lobar or multi-lobar type

Localized region of focal and generalized slowing based on electroencephalography (EEG).

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C13325 Longitudinal Interval Follow-Up Evaluation (LIFE) - alcohol dependence indicator

Alcohol dependence indicator, using the Longitudinal Interval Follow Up Evaluation (LIFE)

Supplemental Longitudinal Interval Follow-Up Evaluation DSM-IV VERSION (LIFE DSM-IV) Epilepsy Epilepsy
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication.

Supplemental AED Resistance Log Epilepsy Epilepsy
C21861 Beck Anxiety Inventory (BAI) - Total score interpretation type

Type of the total score (BAITotalScore) interpretation, as part of the Beck Anxiety Inventory (BAI)

Supplemental Beck Anxiety Inventory (BAI) Epilepsy Epilepsy
C13080 American National Adult Reading Test (AmNART) - pronounce chassis indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "chassis".

Supplemental American National Adult Reading Test (AmNART) Epilepsy Epilepsy
C14367 Surgery intraoperative cortical stimulation mapping indicator

The indicator for whether a map of the locations where brain cortex tissue stimulated was created during the surgical procedure

Supplemental Surgery and Pathology Epilepsy Epilepsy
C53930 California Verbal Learning Test Childrens version (CVLT-C) - Long-Delay Free-Recall Trial start time

Starting time of Long Delay Free Recall trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.

Supplemental California Verbal Learning Test - Children (CVLT-C) Epilepsy Epilepsy
C08261 Imaging radioligand dose value

Dose of injected radioligand for the imaging scan

Supplemental Positron Emission Tomography (PET) Localization Epilepsy Epilepsy
C18968 EEG interictal discharge other text

The free-text field related to 'EEG interictal discharge type' specifying other text. Interictal type of discharge using electroencephalogram (EEG).

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
Displaying 1 - 25 of 1219

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.