CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1360
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Epilepsy Epilepsy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Epilepsy Epilepsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Epilepsy Epilepsy
C58581 Seizure epilepsy classification type

The type of epileptic seizure(s) the participant/subject experiences

Core Classification of Seizures Epilepsy Epilepsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Epilepsy Epilepsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Epilepsy Epilepsy
C58580 Specific epilepsy etiology classification type

The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies

Core Classification of Etiology Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Epilepsy Epilepsy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Epilepsy Epilepsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Epilepsy Epilepsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Epilepsy Epilepsy
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Epilepsy Epilepsy
C15910 Assessment date and time

The date of participant's injury

Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) Epilepsy Epilepsy
C53939 California Verbal Learning Test Childrens version (CVLT-C) - Neither list prototipical words count

Count of neitehr list prototipical (NP) recalls in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

Supplemental California Verbal Learning Test - Children (CVLT-C) Epilepsy Epilepsy
C13510 Headache Screening Survey (HSS) - headache diagnosis type

The type as related to headache diagnosis from Headache Screening Survey (HSS) which is a questionnaire that screens for alcohol dependency without it appearing to be the main focus of the instrument

Supplemental Migraine Headaches Questionnaire 21-Item Epilepsy Epilepsy
C09601 Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score

The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Epilepsy Epilepsy
C51788 Adaptive Behavior Assessment System III (ABAS III) - Make appointment telephone internet scale

Scale related to the adult making appointments by telephone, mobile device, or internet, as part of the Adaptive Behavior Assessment System III (ABAS III)

Supplemental Adaptive Behavior Assessment Scale (ABAS-II) Epilepsy Epilepsy
C13126 Hague Side Effects Scale (HASES) - doubled blurred vision scale

The reported level of severity of double or blurred vision noticed by a guardian following administration of antiepileptic medication in a participant/subject during the past 3 months according to Hague Side Effects Scale (HASES)

Supplemental Hague Side Effects Scale Epilepsy Epilepsy
C20487 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition response bias percentage value

Percentile for Recognition Response Bias portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) Epilepsy Epilepsy
C13105 Checklist for Autism in Toddlers (CHAT) - enjoy playing indicator

The indicator if child enjoys playing peek-a-boo/hide-and-seek from the Checklist for Autism in Toddlers (CHAT) which is a screening instrument which identifies children aged 18 months who are at risk of having social-communication disorders

Supplemental Checklist for Autism in Toddlers (CHAT) Epilepsy Epilepsy
C18559 Device implanted serious adverse effect modification description text

The reason for modification of original parameters or original electrode configuration of implanted device due to serious device adverse effect(s) specification

Supplemental Implanted Devices Log Epilepsy Epilepsy
C14569 EEG interictal periodic discharge type

Distinctive electroencephalogram (EEG) waves or complexes, distinguished from background EEG activity, that suggests a seizure tendency

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C14419 Medication plasma concentration result unit of measure

Unit of measure used for the drug plasma concentration

Supplemental AED Plasma Concentration Epilepsy Epilepsy
Displaying 1 - 25 of 1360

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.