CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59501	Surgery neocortical resection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59499	Surgery neocortical resection occipital laterality type	Laterality type relative to the occipital area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59503	Surgery neocortical resection medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59498	Surgery neocortical resection lateral temporal laterality type	Laterality type relative to the lateral temporal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59508	Surgery neocortical resection largest lateral extent estimated value	The longest estimated length (in cm) of resection, in the lateral (LAT) dimension, that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59509	Surgery neocortical resection largest depth estimated value	The largest estimated depth (in cm) of resection that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59507	Surgery neocortical resection largest anterior-posterior extent estimated value	The longest estimated length (in cm) of resection, in the anterior-posterior (AP) dimension, that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59505	Surgery neocortical resection insula laterality type	Laterality type relative to the insula area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59502	Surgery neocortical resection dorsolateral frontal laterality type	Laterality type relative to dorsolateral frontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59504	Surgery neocortical resection central cortex laterality type	Laterality type relative to the central cortex area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59497	Surgery neocortical resection anatomic site	Anatomic location(s) of the suspected anatomical abnormality in the brain to be evaluated during a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14342	Surgery multiple subpial transection with resection indicator	Indicator for whether brain tissue was removed at the same time that nerve fibers in the gray matter were cut during multiple subpial transection (MST) surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59537	Surgery multiple subpial transection parietal laterality type	Laterality type relative to the parietal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59538	Surgery multiple subpial transection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59536	Surgery multiple subpial transection occipital laterality type	Laterality type relative to the occipital area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59535	Surgery multiple subpial transection medial temporal laterality type	Laterality type relative to the medial temporal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59540	Surgery multiple subpial transection medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59534	Surgery multiple subpial transection lateral temporal laterality type	Laterality type relative to the lateral temporal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14340	Surgery multiple subpial transection largest lateral dimension estimated value	The longest estimated length (in cm) of tissue transected in the lateral (LAT) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14339	Surgery multiple subpial transection largest anterior-posterior dimension estimated value	The longest estimated length (in cm) of tissue transected in the anterior-posterior (AP) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59542	Surgery multiple subpial transection estimate size type	Type of tissue size estimation relative to multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59539	Surgery multiple subpial transection dorsolateral frontal laterality type	Laterality type relative to the dorsolateral frontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59541	Surgery multiple subpial transection central cortex laterality type	Laterality type relative to the central cortex area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14341	Surgery multiple subpial transection anatomic site	The anatomic location(s) where tissue was transected during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59514	Surgery multi-lobar temporal lobe resection temporal percentage estimate remove range	Range of estimated percentage of temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.