CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1360
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C13262 Veterans Affairs Toxicity Scale - impotence score

Pre-specified scores based on the severity of impotence: transient, occassional or tolerable; continuous or intolerable

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13261 Veterans Affairs Toxicity Scale - impotence indicator

Indicate whether or not patient has impotence (libido or potency) problems related to drug use

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13264 Veterans Affairs Toxicity Scale - hyponatremia score

The score to indicate whether the participant/subject had a blood laboratory value where serum sodium concentration was less than 120 mmol/L

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13263 Veterans Affairs Toxicity Scale - hyponatremia indicator

Indicator for whether the participant/subject had a blood laboratory value where serum sodium concentration was less than 120 mmol/L

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13260 Veterans Affairs Toxicity Scale - hypersensitivity score

Pre-specified scores for two degrees of hypersensitivity reaction: transient (stopped with treatment) or severe (did not stop with treatment)

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13259 Veterans Affairs Toxicity Scale - hypersensitivity indicator

Indicate whether or not patient has a hypersensitivity reaction to the drug (general maculopapular rash)

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13274 Veterans Affairs Toxicity Scale - hirsutism score

Pre-specified scores for hirsutism (excess hair growth): Moderate (noticeable on face, trunk or limbs); severe (excessive and bothersome to patients)

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13254 Veterans Affairs Toxicity Scale - hematopoietic system problems indicator

Indicate whether or not the patient has any drug-related hematopoietic system problems

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13258 Veterans Affairs Toxicity Scale - hematopoietic problems total score

Summation of the circled scores for hematopoietic system problems on the Veterans Affairs Toxicity Scale

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13257 Veterans Affairs Toxicity Scale - hematopoietic problems other text

Text to describe hematopoietic problem other than reduced plateletes and WBC problems, if applicable

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C17645 Veterans Affairs Toxicity Scale - hematopoietic problems other score

Score hematopoietic problem other than reduced platelets and WBC problems, if applicable

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13273 Veterans Affairs Toxicity Scale - hair texture score

Score for hair texture or changes other than loss (e.g. becoming coarse, fine, curly)

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13271 Veterans Affairs Toxicity Scale - hair quantity/texture indicator

Indicate whether or not patient has any changes in hair quantity or texture since starting drug

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13272 Veterans Affairs Toxicity Scale - hair loss score

Pre-specified scores for hair loss: Mild (notice excess hair in comb);Moderate (visible thinning of hair or hair loss in clumps);Severe (visible alopecia or exceedingly bothersome to patient)

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13275 Veterans Affairs Toxicity Scale - hair change total socre

Total score for hair quantity or texture change

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13250 Veterans Affairs Toxicity Scale - gastrointestinal problem transient or occasionally score

Circle the pre-specified scores for gastrointestinal symptoms (distress, nausea, vomiting) if these symptoms occur transiently or occasionally after medication, as part of the Veterans Affairs (VA) Toxicity Scale

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13251 Veterans Affairs Toxicity Scale - gastrointestinal problem often score

Circle the pre-specified scores for gastrointestinal symptoms (distress, nausea, vomiting) if these symptoms occur often after medication as part of the Veterans Affairs (VA) Toxicity Scale

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13253 Veterans Affairs Toxicity Scale - gastrointenstinal problem other text

The free-text field to specify drug-related gastrointestinal problems other than distress, nausea or vomiting as part of the Veterans Affairs (VA) Toxicity Scale

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13252 Veterans Affairs Toxicity Scale - gastrointenstinal problem often during the day score

Circle the pre-specified scores for gastrointestional symptoms (distress, nausea, vomitting) if these symptoms occur often and during the day after medication

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13281 Veterans Affairs Toxicity Scale - gait score

The score as related to gait, normal walking as part of the Veterans Affairs (VA) Toxicity Scale

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13280 Veterans Affairs Toxicity Scale - dysarthria score

The score as related to dysarthria as part of the Veterans Affairs (VA) Toxicity Scale

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13249 Veterans Affairs Toxicity Scale - drug-related gastrointenstinal problem indicator

Indicate whether the patient has any drug-related gastrointestinal problems

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13294 Veterans Affairs Toxicity Scale - drug related headaches often during day score

Score used to report occurrence of drug related headaches often during the day

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13293 Veterans Affairs Toxicity Scale - drug related headaches often after meds score

Score used to report occurrence of drug related headaches often after medication(s)

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
C13292 Veterans Affairs Toxicity Scale - drug related headache transient or occasionally score

Score used to report occurrence of drug related headaches transiently or occasionally

 Supplemental VA Toxicity Scale True Epilepsy Epilepsy
Displaying 51 - 75 of 1360

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.