CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 451 - 475 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1118-C14421	C14421	Medication plasma concentration no adherence clinically significant indicator	Whether the clinician expects or is able to confirm clinically significant non adherence to the prescribed drug dosing regimen based on the drug plasma concentration results	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1118-C14413	C14413	Medication plasma concentration medication name	Generic or brand name of the medication for which the plasma concentration is measured	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1118-C14414	C14414	Medication plasma concentration last dose value	Amount of last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1118-C14420	C14420	Medication plasma concentration last dose unit of measure UCUM code	The Unified Code for Units of Measure (UCUM) code that represents the dosage unit of measure for the last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1118-C14415	C14415	Medication plasma concentration last dose unit of measure	Dosage unit of measure for the last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1118-C14417	C14417	Medication plasma concentration last dose date and time	Date (and time if applicable and known) when the last dose was administered before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1118-C14416	C14416	Medication plasma concentration blood draw date and time	Date (and time if applicable and known) when the blood specimen was collected for the drug plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1119-C18553	C18553	Medication non-anti-epileptic drug prior or concomitant use day count	The numeric count of days a non-anti-epileptic drug (NAED) was taken before or during a study	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1116-C18536	C18536	Medication non-anti-epileptic drug prior or concomitant dose frequency	The frequency of use of a prior/concomitant non-anti-epileptic drug (NAED)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1119-C18552	C18552	Medication non-anti-epileptic drug log line number	The referenced line number of an entry on the non-anti-epileptic drug (NAED) plasma concentration log	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1116-C18539	C18539	Medication generic or brand type	The identification of the medication label or manufacture as being either a brand name product or generic product	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1117-C18540	C18540	Medication dosing schedule administration time	Medication administration time schedule	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1116-C18538	C18538	Medication discontinuation idiosyncratic side effect text	The free-text field to specify the idiosyncratic side effect that resulted in a discontinuation of medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1116-C18537	C18537	Medication discontinuation dose related side effect text	The free-text field to specify the dose-related side effect that resulted in a discontinuation of medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1117-C14496	C14496	Medication anti-epileptic drug three months therapy without discontinuation indicator	Indicator as to whether the duration of therapy exceeded 3 months without discontinuation due to adverse events	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14498	C14498	Medication anti-epileptic drug seizure despite adjustment indicator	Indicator as to whether, after adjusting dose of anti-epileptic drug (AED), the subject continued to experienced seizures	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1118-C18548	C18548	Medication anti-epileptic drug plasma concentration log line number	The reference line number of an entry on the anti-epileptic drug (AED) plasma concentration log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1118-C18547	C18547	Medication anti-epileptic drug plasma concentration log comment text	The free-text field to specify comments regarding the anti-epileptic drug (AED) plasma concentration log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1117-C18541	C18541	Medication anti-epileptic drug name	Name of the prior or concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1118-C18545	C18545	Medication anti-epileptic drug log line number	The referenced line number of an entry on the anti-epileptic drug (AED) log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1117-C18545	C18545	Medication anti-epileptic drug log line number	The referenced line number of an entry on the anti-epileptic drug (AED) log	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C18544	C18544	Medication anti-epileptic drug formulation indicator	The yes/no indicator for formulation of the prior/concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14497	C14497	Medication anti-epileptic drug dose adjustment attempt indicator	Indicator as to whether attempts were made to adjust the dose of the anti-epileptic drug (AED) prior to discontinuation	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1117-C14495	C14495	Medication anti-epileptic drug appropriate indicator	Indicator as to whether the anti-epileptic drug (AED) provided sufficient control for the participant's/subject's epilepsy syndrome	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.