CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59478	C59478	Surgery amygdalohippocampectomy laterality type	Laterality type relative to amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14313	C14313	Surgery amygdalohippocampectomy hippocampus estimated length value	The estimated length of tissue (in cm) resected from the hippocampus in the brain during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59479	C59479	Surgery amygdalohippocampectomy approach anatomic site other text	The free-text field related to 'Surgery amygdalohippocampectomy approach anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14314	C14314	Surgery amygdalohippocampectomy approach anatomic site	The relative pathway taken by the surgeon to gain access to the hippocampus described in terms of other surrounding brain structures	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14312	C14312	Surgery amygdalohippocampectomy amygdala estimated percentage value	The estimated percentage of tissue resected from the total volume of tissue in the amygdala during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C58587	C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58580	C58580	Specific epilepsy etiology classification type	The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies	Core	Classification of Etiology	False	Epilepsy	Epilepsy
F1806-C19508	C19508	Source of information queried type	Type of source of information queried	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1806-C19511	C19511	Seven days post traumatic brain injury seizure occurrence indicator	Indicator for the occurrence of seizure(s) later than seven days after the date of the traumatic brain injury	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1126-C02309	C02309	Serious adverse event indicator	The indicator of whether the adverse event is serious.	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1106-C14469	C14469	Sensory system modalities affected type	The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18949	C18949	Sensory system modalities affected other text	The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14466	C14466	Sensory system global assessment result	The condition and ability of sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18947	C18947	Sensory system global assessment other text	The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14467	C14467	Sensory system abnormality symmetry type	Symmetry of abnormality for sensory system results	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18517	C18517	Sensory system abnormality stocking present text	The free-text field to describe the stocking sensory abnormality, a generalised and gradual loss of peripheral nerve function results in a receding stocking pattern	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18516	C18516	Sensory system abnormality stocking glove present text	The free-text field to describe the stocking sensory abnormality, a generalised and gradual loss of peripheral nerve function results in a receding glove and stocking pattern	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18515	C18515	Sensory system abnormality sensory nerve present text	The free-text field to describe the sensory nerve abnormality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18514	C18514	Sensory system abnormality participant description text	The free-text field to capture the participant's description of the sensory abnormality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18513	C18513	Sensory system abnormality dermatome present text	The free-text field to describe the dermatome sensory abnormality, the area of skin supplied with afferent nerve fibers by a single posterior spinal root	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14468	C14468	Sensory system abnormality anatomic site	The location of abnormality for sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C18948	C18948	Sensory system abnormality anatomic other text	The free-text field related to 'Sensory system abnormality anatomic site' specifying other text. The location of abnormality for sensory system	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14556	C14556	Seizures video EEG recorded count	The number of seizures that have video and electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14558	C14558	Seizures recorded only video count	The number of seizures with video ONLY, without electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14557	C14557	Seizures recorded only EEG count	The number of seizures with electroencephalogram (EEG) only (without video)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.