CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 26 - 50 of 1360

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C21496	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest item score	Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C21493	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest item number	Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C21491	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subset response text	Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
C21114	Visit post baseline day count	The number of days since baseline visit	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C13268	Veterans Affairs Toxicity Scale - weight change type	The type of weight change If the patient has weight change	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13270	Veterans Affairs Toxicity Scale - weight change score	The semiquantitative score applied for the range of weight gained or lost	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13267	Veterans Affairs Toxicity Scale - weight change indicator	Indicate whether the participant/subject had a change in weight, either gain or loss	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13284	Veterans Affairs Toxicity Scale - tremor score	Tremor (finger to nose, long reach; eyes open/eyes closed-resting and with arms extended forward)	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13276	Veterans Affairs Toxicity Scale - toxicity other text	Describe toxicity symptoms other than those shown from Question 1 to 8 on the Veterans Affairs Toxicity Scale	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13296	Veterans Affairs Toxicity Scale - total neurotoxicity score	The total neurotoxicity score, as part of The Veterans Affairs (VA) Toxicity Scale	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13285	Veterans Affairs Toxicity Scale - total 1-6 score	Section A total score	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13277	Veterans Affairs Toxicity Scale - systematic sum score	Summation of scores of Question 1 to 9 on the Veterans Affairs Toxicity Scale Part A to yield Systematic Toxicity Score	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13286	Veterans Affairs Toxicity Scale - sedation score	Sedation (level of consciousness)	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13256	Veterans Affairs Toxicity Scale - reduced WBC count score	Pre-specified scores for the reduced WBC	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13255	Veterans Affairs Toxicity Scale - reduced platelet count score	Pre-specified scores for the reduced platelet count	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13282	Veterans Affairs Toxicity Scale - rapid alternating movements score	Rapid Alternating Movements (hand on knee, flip side to side, grossly clumsy)	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C17647	Veterans Affairs Toxicity Scale - other toxicity score	Score for other toxicity problems if applicable	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C17646	Veterans Affairs Toxicity Scale - other neurotoxicity score	The score for other neurotoxicity symptoms, as part of The Veterans Affairs (VA) Toxicity Scale	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13295	Veterans Affairs Toxicity Scale - other neurotoxicity description text	Description of other neurotoxicity as part of the Veterans Affairs Toxicity Scale	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13279	Veterans Affairs Toxicity Scale - nystagmus score	Nystagmus (not end point)	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13283	Veterans Affairs Toxicity Scale - neurotoxicty rating score	Summation of scores to obtain the Neurotoxicty Rating Score on the Veterans Affairs Toxicity Scale	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13266	Veterans Affairs Toxicity Scale - liver abnormality score	Pre-specified scores for two degrees of drug-related liver disease with abnormal liver function tests (SGOT, SGPT repeatedly more than twice normal): drug under observation; drug discontinued	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy
C13265	Veterans Affairs Toxicity Scale - liver abnormality indicator	Indicate whether or not patient has drug-related abnormal liver functions (SGOT, SGPT repeatedly more than twice normal)	Supplemental	VA Toxicity Scale	True	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.