CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 883
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14470 Epilepsy syndrome likelihood present type

Certainty of whether the participant/subject has or had the epilepsy syndrome for the particular age period

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C18950 Epilepsy syndrome neonatal onset other text

The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C14471 Epilepsy syndrome neonatal onset type

Common epilepsy syndromes with onset in the neonatal period (

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14483 Epilepsy syndrome other localization type

Epilepsy syndromes related to other localizations

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C19072 Epilepsy syndrome unspecified other text

The free-text field related to 'Epilepsy syndrome unspecified type' specifying other text. Epilepsy syndromes with unspecified relationships that do not fit into other specified categories

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C18502 Epilepsy syndrome unspecified type

Epilepsy syndromes with unspecified relationships that do not fit into other specified categories

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C14485 Epilepsy syndromes distinct confidence level type

Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Epilepsy Epilepsy
C14115 Family history sinistrality indicator

Whether the participant/subject has a family history of sinistrality, or left-handedness/preference for using the left hand

Supplemental Neuropsychological Testing Background Information Epilepsy Epilepsy
C19504 Family member body uncontrolled movement indicator

Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C19505 Family member mental state awareness level unexplained change indicator

Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C19506 Family member repeated unusual attack or convulsion other type indicator

Indicator for any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less that a family member has had or told you that you/they had

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C19507 Family member seizures or epilepsy indicator

Indicator for someone having told you that you/your family member have seizures or epilepsy

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C18535 Focal and generalized slowing no local onset description text

The free-text field to describe the nonlocalized onset of focal and generalized slowing

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C21107 Gait abnormality assessment other text

The free-text field for other type of abnormal gait

Supplemental Neurological Exam Epilepsy Epilepsy
C14465 Gait abnormality assessment type

Type of abnormal gait

Supplemental Neurological Exam Epilepsy Epilepsy
C11061 Gait assessment result

Result of the gait assessment

Supplemental Neurological Exam Epilepsy Epilepsy
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

Supplemental Neurological Exam Epilepsy Epilepsy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Epilepsy Epilepsy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Epilepsy Epilepsy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Epilepsy Epilepsy
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C13205 Generalized Anxiety Disorder (GAD-7) - feeling nervous scale

Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
Displaying 276 - 300 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.