CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 26 - 50 of 1360

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13053	Adult ADHD Self-Report Scale (ASRS) - delay avoid task frequency	The frequency assessment for delaying or avoiding a task related to question in the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C13051	Adult ADHD Self-Report Scale (ASRS) - difficulty organizing frequency	The frequency assessment for diffculty getting things in order when you have to do a task that requires organization related to question in the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C13054	Adult ADHD Self-Report Scale (ASRS) - fidget squirm frequency	The frequency assessment for fidgeting or squirming with hands or feet when sitting down for a long time related to question in the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C13055	Adult ADHD Self-Report Scale (ASRS) - overly active frequency	The frequency assessment for feeing overly active and compelled to do things related question in the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C13052	Adult ADHD Self-Report Scale (ASRS) - problem remembering appointments obligations frequency	The frequency assessment for problems remembering appointments or obligations related to question in the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C13056	Adult ADHD Self-Report Scale (ASRS) - total score	The total score related to the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C13050	Adult ADHD Self-Report Scale (ASRS) - wrapping up frequency	The frequency assessment for trouble wrapping up final details in the Adult ADHD Self-Report Scale (ASRS) Symptom Checklist, a self-reported questionnaire used to assist in the diagnosis of adult ADHD	Supplemental	Adult ADHD Self-Report Scale (ASRS)	True	Epilepsy	Epilepsy
C14272	Adverse event AED action taken text	Text of action taken with the anti-epileptic drug (AED) due to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02310	Adverse event CTCAE low level term name	Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02311	Adverse event MedDRA lower level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02303	Adverse event outcome status	Final status of the participant/subject related to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02304	Adverse event relatedness scale	Scale of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02300	Adverse event study intervention action taken type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2)	True	Epilepsy	Epilepsy
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C08088	Age value unit of measure	Unit of measure used to initially record the age value	Supplemental	Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2)	True	Epilepsy	Epilepsy
C17648	American National Adult Reading Test (AmNART) - correct responses count	American National Adult Reading Test (AmNART) correct responses from the participant	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C17649	American National Adult Reading Test (AmNART) - data collected date	American National Adult Reading Test (AmNART) date the data was collected	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C17650	American National Adult Reading Test (AmNART) - education level code	American National Adult Reading Test (AmNART) level of education of the participant	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.