CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1111-C14046	C14046	Magnetoencephalography/ electroencephalography source analysis distributed source model type	Method used for magnetoencephalography/electroencephalography (MEG/EEG) signal analysis	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1111-C14047	C14047	Magnetoencephalography/ electroencephalography source analysis beamformer type	A signal processing technique used for determining location of electric activity that can be accomplished via different approaches	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1143-C14115	C14115	Family history sinistrality indicator	Whether the participant/subject has a family history of sinistrality, or left-handedness/preference for using the left hand	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14116	C14116	Learning disability or attention deficit diagnosis indicator	Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14118	C14118	Disability application status	People 5 years old and over are considered to have a disability if they have one or more of the following (a) blindness, deafness, or a severe vision or hearing impairment; (b) a substantial limitation in the ability to perform basic physical activities, such as walking, climbing stairs, reaching, lifting, or carrying; (c) difficulty learning, remembering, or concentrating; or (d)difficulty dressing, bathing, or getting around inside the home	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14119	C14119	Psychological/neuropsychological previous testing indicator	Whether previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14120	C14120	Psychological/neuropsychological previous testing age value	Age at which previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14121	C14121	Language laterality indicator	Presence or absence of established localization for language skills as indicated by fMRI or Wada	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14122	C14122	Language laterality result	Result of language laterality testing by fMRI or Wada to identify localization of language skills	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1102-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1104-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1144-C14136	C14136	Seizure daily diary no seizure indicator	The indicator of whether the participant/subject experienced NO seizures on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1144-C14138	C14138	Seizure daily diary seizure type count	The number of seizures of the particular seizure type that the participant/subject experienced on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1144-C14139	C14139	Seizure diary completer type	The type of person recording the diary data	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1117-C14142	C14142	Medication prior or concomitant formulation text	Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1116-C14142	C14142	Medication prior or concomitant formulation text	Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1126-C14272	C14272	Adverse event AED action taken text	Text of action taken with the anti-epileptic drug (AED) due to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1123-C14297	C14297	Surgery diagnostic electrode type	The type of diagnostic electrode implanted during surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14299	C14299	Surgery anterior temporal lobectomy superior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the superior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14300	C14300	Surgery anterior temporal lobectomy middle temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the middle temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14301	C14301	Surgery anterior temporal lobectomy inferior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the inferior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14302	C14302	Surgery anterior temporal lobectomy parahippocampal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14303	C14303	Surgery anterior temporal lobectomy amygdala resection estimated percentage value	The estimated percentage of tissue resected from the total volume of tissue in the amygdala during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14304	C14304	Surgery anterior temporal lobectomy hippocampus resection estimated length value	The estimated length of tissue (in cm) resected from the hippocampus in the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.