CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1102-C58588	C58588	Seizure focal impaired awareness present status	The status indicating the degree to which a focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58589	C58589	Seizure focal impaired awareness motor present status	The status indicating the degree to which a motor/observable focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58590	C58590	Seizure focal impaired awareness non-motor present status	The status indicating the degree to which a non-motor focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58591	C58591	Seizure focal bilateral tonic clonic present status	The status indicating the degree to which a focal to bilateral, tonic clonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58592	C58592	Seizure focal unknown aware present status	The status indicating the degree to which a focal, unknown awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58593	C58593	Seizure focal unknown awareness observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure with observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58594	C58594	Seizure focal unknown awareness no observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure without observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58595	C58595	Seizure focal onset clonic present status	The status indicating the degree to which a focal onset clonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58596	C58596	Seizure focal onset tonic present status	The status indicating the degree to which a focal onset tonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58597	C58597	Seizure focal onset atonic present status	The status indicating the degree to which a focal onset atonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58598	C58598	Seizure focal onset epileptic spasm present status	The status indicating the degree to which a focal onset epileptic spasm seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58599	C58599	Seizure epilepsy generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58600	C58600	Seizure epilepsy generalized motor subtype type	The element related to type of motor generalized seizures the participant/subject is experiencing	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58601	C58601	Seizure epilepsy generalized non-motor subtype type	The element related to type of non-motor generalized seizures the participant/subject is experiencing	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58602	C58602	Seizure epilepsy unknown onset subtype status	The element related to the degree to which a seizure of unknown onset is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58603	C58603	Seizure epilepsy unknown onset subtype type	The element related to type of unknown onset seizures the participant/subject is experiencing	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58604	C58604	Seizure unclassified classification status	The element related to the degree to which unclassified seizures are present	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1103-C58605	C58605	Metabolic toxic epilepsy etiology type	The categorization for metabolic toxic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58606	C58606	Other epilepsy etiology type	The categorization for other etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1102-C58607	C58607	Seizure epilepsy generalized subtype status	The element related to the degree to which a generalized seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Epilepsy	Epilepsy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Epilepsy	Epilepsy
F1123-C59368	C59368	Suspected pathology type	The type of suspected diagnosis given to the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

Displaying 676 - 700 of 883

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.