CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1001 - 1025 of 1090
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12438 Polysomnography blood oxygen saturation mean awake measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) while the participant/subject was awake, from the polysomnography being reported

Supplemental Polysomnography Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12238 Biopsy and autopsy epon embedded tissue abnormalities location type

Type of abnormality observed microscopically in epon-embedded tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12277 Biospecimen fragment collect count

Count of fragments collected in the tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C19066 Therapy rehabilitation session other text

The free-text field related to 'Therapy rehabilitation session duration' specifying other text. Duration of a therapy or rehabilitation session

Supplemental External Devices and Other Treatments Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10682 Imaging anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12755 Electrophysiology Valsalva ratio

The Valsalva ratio measured during autonomic function testing

Supplemental Electrophysiology Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10589 Imaging shot count

The number of shots used in the imaging echo-planner acquisition

Supplemental Diffusion Tensor Imaging (DTI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10876 Holter exam mean heart rate

Mean heart rate measured during the Holter examination

Supplemental Holter Examination Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12842 Cardiac MRI ventricle end diastolic volume index measurement

Measurement of the selected ventricle's end diastolic volume divided by the participant's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12446 Polysomnography blood oxygen saturation drop hour non-REM sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during non-rapid eye movement (REM) sleep time

Supplemental Polysomnography Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18849 Respiratory support negative pressure device delivery method other text

The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device

Supplemental Respiratory Interventions Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12248 Pathologist name

Name of pathologist who diagnosed the case

Supplemental Muscle Biopsy and Autopsy Tissue Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18203 Family history DMD BMD death cause text

Text describing the cause of death for relative with DMD or BMD

Supplemental Family History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C17906 Specimen immunohistochemical stain use indicator

Indicator whether immunohistochemcial stains were used on the tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12863 Echocardiogram left atrium view type

Type of view of the left atrium on the echocardiogram

Supplemental Echocardiogram Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12203 Gastrointestinal therapy fundoplication date

Date on which the participant/subject had fundoplication surgery

Supplemental GI Therapies Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12468 Imaging brain magnetic resonance imaging perform multiple count type

Type of count for the number of brain magnetic resonance imaging (MRI) sessions performed on the participant

Supplemental Brain Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12763 Electrophysiology tilt study heart rate change result

Heart rate changes experienced from a tilt test

Supplemental Electrophysiology Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10683 Imaging T2 weighted spin-echo acquired indicator

Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction

Supplemental Diffusion Tensor Imaging (DTI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12930 Cardiovascular Holter exam ventricular dysrhythmia type

Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12850 Cardiac MRI left ventricle non-compaction ratio value

Value of the ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12454 Polysomnography transcutaneous carbon dioxide measured indicator

Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported

Supplemental Polysomnography Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Supplemental Fat Aspirate Tissue Specimens Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
Displaying 1001 - 1025 of 1090

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.