CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 1026 - 1050 of 1090

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2030-C08006	C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Supplemental-Highly Recommended	Medical History of DMD	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C18242	C18242	Symptoms first appeared age value	Value of the age at which the participant/subject first noted a neuromuscular symptom	Supplemental	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1515-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1062-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Electrophysiology	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1515-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1515-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1062-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Electrophysiology	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1515-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1519-C18200	C18200	Therapeutic stretching type	Type of stretching therapy	Supplemental	External Devices and Other Treatments	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1519-C18199	C18199	Therapeutic use indicator	Indicator for whether the participant/subject uses the type of therapy	Supplemental	External Devices and Other Treatments	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1519-C18182	C18182	Therapy rehabilitation frequency	Frequency the participant/subject received the therapy or rehabilitation	Supplemental	External Devices and Other Treatments	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1519-C21667	C21667	Therapy rehabilitation ICD 10 CM code	ICD-10-CM code that describes the therapy or rehabilitation received by the participant/subject	Supplemental	External Devices and Other Treatments	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1519-C18176	C18176	Therapy rehabilitation indicator	Indicator for whether the participant/subject uses other therapy or rehabilitation procedures besides the use of mobility devices, orthoses, and positioning devices	Supplemental	External Devices and Other Treatments	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1519-C18181	C18181	Therapy rehabilitation session duration	Duration of a therapy or rehabilitation session	Supplemental	External Devices and Other Treatments	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1519-C19066	C19066	Therapy rehabilitation session other text	The free-text field related to 'Therapy rehabilitation session duration' specifying other text. Duration of a therapy or rehabilitation session	Supplemental	External Devices and Other Treatments	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2127-C12283	C12283	Tissue abnormality mitochondria type	Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2127-C12281	C12281	Tissue abnormality myelin axon decrease status	Status of any observed decrease in the myelinated axon numbers of the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2127-C12282	C12282	Tissue abnormality myelination type	Type of any observed myelination in the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1999-C12285	C12285	Tissue specimen collection anatomic site	Anatomic site from which the tissue specimen was collected	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1999-C18830	C18830	Tissue specimen collection anatomic site other text	The free-text field related to 'Tissue specimen collection anatomic site' specifying other text. Anatomic site from which the tissue specimen was collected	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1999-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1048-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental	Fat Aspirate Tissue Specimens	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2137-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2127-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)

Displaying 1026 - 1050 of 1090

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.