C00311
Birth weight report value
Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian
Supplemental
Vital Signs
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C58677
Gender identity type
Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.
Core
General Core
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C58676
Birth sex assigned type
Self-reported phenotypic sex of participant/subject, assigned at birth.
Core
General Core
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C58651
Tissue specimen section count unknown indicator
Indicator that the count of tissue speciments is unknown.
Supplemental-Highly Recommended
Skin Biopsies for Qualification of Intraepidermal Nerve Fibers
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C58650
Tissue specimen section thickness not known indicator
Indicator that the tissue specimen thickness is not known.
Supplemental
Skin Biopsies for Qualification of Intraepidermal Nerve Fibers
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C17396
Sex genotype type
The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement.
Supplemental
Demographics
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18736
Medication prior or concomitant dose unit of measure other text
The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.
Supplemental
Prior and Current Medications
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12245
Symptom presentation type
Symptoms participant/ subject shows at presentation
Supplemental
Muscle Biopsy and Autopsy Tissue
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21965
Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale
Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21964
Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale
Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21962
Pediatric Quality of Life Inventory(PedsQL) - Total score
Total Score as a part of Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21961
Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale
Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21960
Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale
Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21959
Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale
Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21957
Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale
Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21956
Pediatric Quality of Life Inventory (PedsQL) - Problem sad difficulty scale
Scale of problems with feeling sad or blue, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21955
Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale
Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21954
Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score
Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21953
Pediatric Quality of Life Inventory(PedsQL) - Physical health summary score
Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21951
Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale
Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21950
Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale
Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21949
Pediatric Quality of Life Inventory (PedsQL) - Problem doctor hospital appointment school absent difficulty scale
Scale of problems with missing school to go to the doctor or hospital, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21948
Pediatric Quality of Life Inventory (PedsQL) - Problem heavy lift difficulty scale
Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21946
Pediatric Quality of Life Inventory (PedsQL) - Problem play energy peer difficulty scale
Scale of problems with keeping up when playing with other children, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21945
Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale
Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL).
Supplemental
Pediatric Quality of Life Inventory (PEDSQL)
True
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)