CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 1090
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12253 Biopsy and autopsy atrophy or hyportrophy fiber shape type

Atrophic/ hypertrophic fiber shape

Supplemental Muscle Biopsy and Autopsy Tissue Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12251 Biopsy and autopsy atrophy or hypotrophy type

Atrophy/ hypertrophy type

Supplemental Muscle Biopsy and Autopsy Tissue Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12747 Electrophysiology motor unit number estimation surface motor unit action potential average value

Average surface motor unit action potentials (sMUAPs), estimated using the designated MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18610 Imaging in plane resolution axis 2 measurement

Axis 2 of in-plane spatial resolution used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18610 Imaging in plane resolution axis 2 measurement

Axis 2 of in-plane spatial resolution used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Diffusion Tensor Imaging (DTI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Brain Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10948 Imaging field of view axis 3 measurement

Axis 3 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Magnetic Resonance Spectroscopy (MRS) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00311 Birth weight report value

Birth weight according to the participant's medical report or reported by the parent or legal guardian

Supplemental Vital Signs Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12764 Electrophysiology tilt study blood pressure change result

Blood Pressure changes experienced from a tilt test

Supplemental Electrophysiology Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12787 Gene variant mutation category

Category of the variant or mutation detected on the gene

Supplemental Mutation Analysis Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12363 Respiratory airway clearance medication category

Category or class of airway clearance medication used by the participant/subject

Supplemental Respiratory Interventions Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Supplemental-Highly Recommended Medical History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Supplemental Physical Examination Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Brain Magnetic Resonance Imaging (MRI) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

Supplemental Prior and Current Medications Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C21668 ICD-10-CM code

Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

Supplemental Prior and Current Medications Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C17972 Medication prior concomitant dose frequency Clinical Data Interchange Standards Consortium Standard Data Tabulation Model code

Code that represents the frequency of the dosage of the prior or concomitant medication administered. Clinical Data Interchange Standards Consortium Standard Data Tabulation Model (CDISC SDTM)

Supplemental Prior and Current Medications Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12772 Electrophysiology long exercise test post-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded post- long exercise

Supplemental Electrophysiology Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12770 Electrophysiology long pre-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded pre- long exercise

Supplemental Electrophysiology Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C17949 Spectroscopy water reference data acquire averages count

Count of averages of water reference data, if any, acquired

Supplemental Magnetic Resonance Spectroscopy (MRS) Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
Displaying 26 - 50 of 1090

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.