CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

1090 results.
Operations
Selected 15 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58651 Tissue specimen section count unknown indicator

Indicator that the count of tissue speciments is unknown

Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C01541 Weight measurement

Measurement of participant's weight

Supplemental-Highly Recommended Vital Signs Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18319 Pulmonary function test best trial number

The number of the best pulmonary function testing trial

Supplemental-Highly Recommended Pulmonary Function Testing Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Supplemental-Highly Recommended Medical History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

Supplemental-Highly Recommended Pulmonary Function Testing Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental-Highly Recommended Medical History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12311 Pulmonary function index of lung function type

The different functions of the lungs tested during pulmonary function test (PFT)

Supplemental-Highly Recommended Pulmonary Function Testing Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Supplemental-Highly Recommended Medical History of DMD Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

Supplemental-Highly Recommended Mutation Analysis Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Supplemental-Highly Recommended Prior and Current Medications Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

Supplemental-Highly Recommended Mutation Analysis Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12313 Pulmonary function maximal pressure trial difference indicator

Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water

Supplemental-Highly Recommended Pulmonary Function Testing Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Supplemental-Highly Recommended Vital Signs Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental-Highly Recommended Medical History Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
1090 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.