CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1051 - 1075 of 1090

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1512-C08006	C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C11101	C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C18254	C18254	Medical history assessment indicator	Whether the participant/subject has a history of any medical problems/conditions	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12318	C12318	Pulmonary function forced vital capacity peak flow indicator	Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1999-C12287	C12287	Tissue specimen section count	Count of the number of sections from the tissue specimen that were taken and evaluated	Supplemental-Highly Recommended	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C08007	C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12298	C12298	Pulmonary function test not done reason	Reason the pulmonary function test was attempted but not completed	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12310	C12310	Pulmonary function complete exhalation indicator	Whether the complete amount of air was exhaled from the participant/subject	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12516	C12516	Pulmonary function lung function measurement	Numeric result of index function of the lungs tested	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1999-C58651	C58651	Tissue specimen section count unknown indicator	Indicator that the count of tissue speciments is unknown	Supplemental-Highly Recommended	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1515-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental-Highly Recommended	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12301	C12301	Pulmonary Function Test seat position type	The seated position of the participant/subject during the assessment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12311	C12311	Pulmonary function index of lung function type	The different functions of the lungs tested during pulmonary function test (PFT)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C18319	C18319	Pulmonary function test best trial number	The number of the best pulmonary function testing trial	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2030-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Supplemental-Highly Recommended	Medical History of DMD	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1517-C18873	C18873	Gene mutation detected digenic result specify	The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1518-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental-Highly Recommended	Prior and Current Medications	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1517-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Supplemental-Highly Recommended	Mutation Analysis	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1515-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental-Highly Recommended	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12303	C12303	Pulmonary function test equipment manufacturer name	Name of manufacturer of the pulmonary function test equipment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1522-C12313	C12313	Pulmonary function maximal pressure trial difference indicator	Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2030-C08006	C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Supplemental-Highly Recommended	Medical History of DMD	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)

Displaying 1051 - 1075 of 1090

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.