CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1115
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Core Laboratory Tests and Tracking False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Core Laboratory Tests and Tracking False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions.

 Core Laboratory Tests and Tracking False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

 Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12307 Ulna length measure tool name

Instrument used to measure ulna length

 Exploratory Pulmonary Function Testing False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C11131 Body mass index value

Value of the participant/subject's body mass index, calculated from height and weight.

 Exploratory Vital Signs False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

 Exploratory Pulmonary Function Testing False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12306 Ulna length measurement

The length of the ulna of the participant/subject

 Exploratory Pulmonary Function Testing False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C17946 Spectroscopy sequence parameter repetition time duration

Duration, in ms, of the repetition time (TR) as a spectroscopic sequence parameter in the scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10728 Echocardiogram LVIDs measurement

Left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography

 Supplemental Echocardiogram False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12206 Gastrointestinal therapy medication type

Type(s) of medications taken by the participant/subject for her/his gastrointestinal (GI) therapy

 Supplemental GI Therapies False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12844 Cardiac MRI ventricle end systolic volume index value

Value of the selected ventricle's end systolic volume measurement divided by the participant/subject's body surface area in square meters

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12912 Echocardiogram pericardial effusion abnormal indicator

Whether there is pericardial effusion or abnormality observed by echocardiogram

 Supplemental Echocardiogram False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18379 Recumbent length measurement

A measurement from the top of the participant's head to his or her heels while the participant is lying recumbent.

 Supplemental Vital Signs False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12825 ECG pace rhythm type

Type of paced rhythm, if any, apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18714 Imaging radio frequency coil channel other text

The free-text field related to 'Imaging radio frequency coil channel count' specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18301 Steroid treatment Duchenne or Becker Muscular Dystrophy indicator

Indicator for whether the participant/subject has ever taken steroids for the treatment of Duchenne (DMD) or Becker (BMD) Muscular Dystrophy

 Supplemental Prior and Current Medications False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12454 Polysomnography transcutaneous carbon dioxide measured indicator

Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported

 Supplemental Polysomnography False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18242 Symptoms first appeared age value

Value of the age at which the participant/subject first noted a neuromuscular symptom

 Supplemental Medical History False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12242 Biochemical or genetic test result value

Results of the biochemical or genetic test performed on the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

 Supplemental Demographics False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18871 Needle electromyography spontaneous activity other text

The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

 Supplemental Electrophysiology False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12285 Tissue specimen collection anatomic site

Anatomic site from which the tissue specimen was collected

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12475 Imaging magnetic resonance imaging T1 T2 sequence name

The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
Displaying 26 - 50 of 1115

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.