C01701
Lab specimen collection date and time
Date (and time if applicable and known) when the specimen was collected
Core
Laboratory Tests and Tracking
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C01709
Lab test result status
Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed
Core
Laboratory Tests and Tracking
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18731
Lab test other text
The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions.
Core
Laboratory Tests and Tracking
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10970
Manual muscle testing date and time
Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed
Core
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12307
Ulna length measure tool name
Instrument used to measure ulna length
Exploratory
Pulmonary Function Testing
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C11131
Body mass index value
Value of the participant/subject's body mass index, calculated from height and weight.
Exploratory
Vital Signs
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18834
Ulna length measure tool other text
The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length
Exploratory
Pulmonary Function Testing
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12306
Ulna length measurement
The length of the ulna of the participant/subject
Exploratory
Pulmonary Function Testing
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C17946
Spectroscopy sequence parameter repetition time duration
Duration, in ms, of the repetition time (TR) as a spectroscopic sequence parameter in the scan being reported
Supplemental
Magnetic Resonance Spectroscopy (MRS)
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C10728
Echocardiogram LVIDs measurement
Left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography
Supplemental
Echocardiogram
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12206
Gastrointestinal therapy medication type
Type(s) of medications taken by the participant/subject for her/his gastrointestinal (GI) therapy
Supplemental
GI Therapies
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12844
Cardiac MRI ventricle end systolic volume index value
Value of the selected ventricle's end systolic volume measurement divided by the participant/subject's body surface area in square meters
Supplemental
Cardiac Magnetic Resonance Imaging (MRI)
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12912
Echocardiogram pericardial effusion abnormal indicator
Whether there is pericardial effusion or abnormality observed by echocardiogram
Supplemental
Echocardiogram
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18379
Recumbent length measurement
A measurement from the top of the participant's head to his or her heels while the participant is lying recumbent.
Supplemental
Vital Signs
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C02499
Imaging pulse sequence type
Type of imaging pulse sequence used
Supplemental
Magnetic Resonance Spectroscopy (MRS)
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12825
ECG pace rhythm type
Type of paced rhythm, if any, apparent on the electrocardiogram (ECG) being reported
Supplemental
Electrocardiogram (ECG)
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18714
Imaging radio frequency coil channel other text
The free-text field related to 'Imaging radio frequency coil channel count' specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan
Supplemental
Magnetic Resonance Spectroscopy (MRS)
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18301
Steroid treatment Duchenne or Becker Muscular Dystrophy indicator
Indicator for whether the participant/subject has ever taken steroids for the treatment of Duchenne (DMD) or Becker (BMD) Muscular Dystrophy
Supplemental
Prior and Current Medications
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12454
Polysomnography transcutaneous carbon dioxide measured indicator
Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported
Supplemental
Polysomnography
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18242
Symptoms first appeared age value
Value of the age at which the participant/subject first noted a neuromuscular symptom
Supplemental
Medical History
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12242
Biochemical or genetic test result value
Results of the biochemical or genetic test performed on the specimen
Supplemental
Peripheral Nerves - Biopsies and Autopsies
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00022
Ethnicity USA maternal category
Ethnicity the participant/subject's mother most closely identifies with
Supplemental
Demographics
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C18871
Needle electromyography spontaneous activity other text
The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography
Supplemental
Electrophysiology
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12285
Tissue specimen collection anatomic site
Anatomic site from which the tissue specimen was collected
Supplemental
Skin Biopsies for Qualification of Intraepidermal Nerve Fibers
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12475
Imaging magnetic resonance imaging T1 T2 sequence name
The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)