CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 951 - 975 of 1090

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1054-C12187	C12187	Dual X-ray absorptiometry distal femur T score	Dual X-ray absorptiometry (DEXA) distal femur T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1054-C12186	C12186	Dual X-ray absorptiometry distal femur raw score	Dual X-ray absorptiometry (DEXA) distal femur raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1054-C17921	C17921	Dual X-ray absorptiometry current corticosteroid use indicator	Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1054-C12172	C12172	Dual X-ray absorptiometry beam technique type	The type of beam technique used for Dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1054-C12193	C12193	Dual X-ray absorptiometry appendicular lean soft tissue value	The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1054-C12176	C12176	Dual energy X-ray absorptiometry participant age value	Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C10501	C10501	Diagnosis initial age value	Age of the participant/subject when initially diagnosed with disease/disorder	Supplemental	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2030-C10501	C10501	Diagnosis initial age value	Age of the participant/subject when initially diagnosed with disease/disorder	Supplemental	Medical History of DMD	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C08007	C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Supplemental-Highly Recommended	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2030-C08007	C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Supplemental-Highly Recommended	Medical History of DMD	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C18241	C18241	Diagnosis age value unit of measure	Unit of measure for age value of the participant when initially diagnosed with disease/disorder	Supplemental	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1031-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1031-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1031-C11138	C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1031-C11139	C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F2030-C18253	C18253	Clinical trial previous participation indicator	Indicator of whether the participant/subject participated in any prior clinical trials	Supplemental	Medical History of DMD	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1512-C18253	C18253	Clinical trial previous participation indicator	Indicator of whether the participant/subject participated in any prior clinical trials	Supplemental	Medical History	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1059-C17955	C17955	Cardiovascular ventricular dysrhythmia episode total count	Count of the total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination	Supplemental	Holter Examination	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1059-C17956	C17956	Cardiovascular ventricular dysrhythmia episode duration	Duration, in seconds, of a specific ventricular dysrhythmia episode recorded during the Holter examination	Supplemental	Holter Examination	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1060-C17962	C17962	Cardiovascular tricuspid valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve	Supplemental	Echocardiogram	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1060-C17964	C17964	Cardiovascular pulmonic valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve	Supplemental	Echocardiogram	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1060-C17963	C17963	Cardiovascular mitral valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve	Supplemental	Echocardiogram	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1059-C18879	C18879	Cardiovascular Holter predominant heart rhythm type other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1059-C12917	C12917	Cardiovascular Holter predominant heart rhythm type	Type of heart rhythm the participant exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1059-C18882	C18882	Cardiovascular Holter exam ventricular dysrhythmia type other text	The free-text field related to 'Cardiovascular Holter exam ventricular dysrhythmia type', specifying other text. Type of ventricular dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)

Displaying 951 - 975 of 1090

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.