CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19992 Immunohistochemistry desmin aggregate level status

Level of desmin aggregate

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18850 Respiratory tracheostomy tube timing other text

The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

 Supplemental Prior and Concomitant Medications False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19952 Immunohistochemistry dystrophin rod domain status

The status of dystrophin rod domain (DYS1) in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19864 Medical history physical therapy change since last visit indicator

Indicaor of change in physical therapy since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19679 Imaging muscle MRI ultrasound performed type

Type of muscle magnetic resonance imaging or ultrasound performed

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19912 Biopsy and autopsy rimmed vacuoles status

Rimmed vacuoles status in tissue

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12734 Needle electromyography motor unit action potential stable indicator

The stability of the action potential measure during needle electromyography

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10927 Imaging inversion time duration

Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12408 Pulmonary gas exchange assessment performed location

The location where the gas exchange assessment was performed

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19960 Immunohistochemistry laminin alpha2 merosin 300 status

The status of Laminin a2/Merosin (300 kDa) in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19872 Medical history urinary tract infection since last visit indicator

Indicator of UTI since last study visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17425 EEG duration

The length of time for the Electroencephalography (EEG)

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19701 Imaging muscle MRI ultrasound pattern congenital muscular disease consistent indicator

Indicator of the pattern identified is consistent with a pattern described in a CMD subtype

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19920 Biopsy and autopsy central cores status

Central cores status in biopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19833 Psychiatric depression indicator

Indicator of history of depression

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12742 Electrophysiology neuromuscular jitter pair or endplate study count

Count of the pairs/endplates studied in the neuromuscular jitter study being described

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12416 Pulmonary blood gas partial pressure oxygen value

The numeric value of the blood gas partial pressure of oxygen (P02) in the blood

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19968 Immunohistochemistry dysferlin status

The status of dysferlin in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12399 Respiratory support schedule use time day type

The type as it relates to the time(s) of day the ventilation device is used by the participant/subject

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19880 Medical history upper respiratory infection frequency

Frequency of upper respiratory infection

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19928 Biopsy and autopsy moth eaten fibers status

Moth-eaten fibers status in biopsy/autopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19840 Medical history medication change since last visit indicator

Indicator of medication changes since last study visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 251 - 275 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.