CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 951 - 975 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12175 Dual X-ray absorptiometry performed date

Date the dual X-ray absorptiometry (DXA) was performed

Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10735 Echocardiogram left ventricular hypertrophy status

Status of left ventricular hypertrophy on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12474 Imaging field of view measurement description text

The free-text field to generally describe field of view (FOV) or anatomical positioning

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10751 Echocardiogram tissue doppler mitral annulus E' velocity measurement

Measurement of tissue doppler mitral annulus E' velocity obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18813 Imaging lesion found other text

The free-text field related to 'Imaging lesion found type' specifying other text. Type of lesions found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12841 Cardiac MRI ventricle end diastolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12868 Echocardiogram left ventricular trabeculation ratio indicator

Indicator of whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C54235 Echocardiogram right ventricular posterior wall thickness end diastole measurement

Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10567 Imaging radio frequency coil type

Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12899 Echocardiogram right ventricle end diastolic volume index measurement

Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12907 Echocardiogram right ventricle non-compaction status

Status of non-compaction in the right ventricle on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17961 Cardiovascular aortic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12860 Cardiac MRI intracardiac finding type

Types of intracardial findings observed by cardiac magnetic resonance imaging (MRI)

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10726 Echocardiogram left interventricular septal thickness end diastole measurement

Measurement of left ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C14964 Sedation used indicator

Indicator of whether the participant was administered any sedation

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10740 Echocardiogram left ventricle ejection fraction measurement

Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12228 Tissue specimen name

Tissue specimen name collected from the participant

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10772 Echocardiogram left atrial antero - posterior dimension z-score

Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12869 Echocardiogram left ventricular trabeculation location type

Type of location position of the trabeculation(s) in the left ventricular chamber as assessed by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12850 Cardiac MRI left ventricle non-compaction ratio value

Value of the ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 951 - 975 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.