CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 51 - 75 of 1051

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1904-C19886	C19886	Motor function history lost function date	Date of motor function lost	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1877-C19732	C19732	Birth muscle tone level status	Muscle tone at time mother birthed to the participant/subject	Supplemental	Prenatal and Perinatal History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19934	C19934	Biopsy and autopsy split fibers status	Split fibers status in biopsy/autopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19846	C19846	Medical history tracheostomy since last visit indicator	Indicator of tracheostomy since last visit indicator	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19982	C19982	Immunohistochemistry CD20 percentage value	Percent value of CD20	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1905-C19744	C19744	Goniometry neck measurement	Measurement in degrees of the passive range of motion for neck	Supplemental	Goniometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1879-C18759	C18759	Surgery reason indication other text	The free-text field related to 'Surgery reason indication type' specifying other text. Reason participant/subject is in need of surgery	Supplemental	Surgical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19942	C19942	Biopsy and autopsy granulomas type	Type of granulomas of inflammation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19854	C19854	Medical history scoliosis surgery since last visit indicator	Indicator of scoliosis surgery since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19775	C19775	Medical history sleep pulmonary assessment indicator	Indicator of sleep study completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19825	C19825	Medical history musculoskeletal scoliosis diagnosis date	Date of first detection of scoliosis	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1833-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19783	C19783	Medical history pulmonary bilevel positive airway pressure indicator	Indicator of bilevel positive airway pressure	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C20322	C20322	Symptom neuromuscular presentation type	Symptoms of neuromuscular disease in participant/ subject at presentation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19791	C19791	Medical history pulmonary antibiotics use frequency	Frequency of antibiotic use	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19888	C19888	Age biopsy year value	Age (in years) of participant/subject at biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19800	C19800	Medical history endocrine menarche indicator	Indicator of start of menarche	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19896	C19896	Elevated erythrocyte sedimentation rate indicator	Indicator of whether participant/subject experienced elevated erythrocyte sedimentation rate	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19808	C19808	Medical history abdominal difficulty swallowing indicator	Indicator of history of difficulty swallowing	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19767	C19767	Medical history pulmonary difficulty diagnosis indicator	Indicator of difficulty breathing	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19904	C19904	Symptom disease lab data known disease other text	Text of other symptoms, signs, known diseases, and lab data	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19816	C19816	Medical history musculoskeletal total broken bones type	Type of bones broken	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19991	C19991	Immunohistochemistry protein aggregate myopath panel stain type	Type of protein aggregate myopathy panel used	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19951	C19951	Immunohistochemistry dystrophin panel stain type	Type of dystrophin panel used	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19863	C19863	Medical history self feed increase difficulty indicator	Indicator of self-feed difficulty	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.