CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12519 Myofiber degeneration severity status

Severity of the Myofiber degeneration muscle diagnostic abnormalities

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

Supplemental Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19782 Medical history asthma pulmonary inhalers use frequency

Frequency of use of steroid inhalers used for asthma

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19996 Biopsy and autopsy additional immunohistochemical assays performed text

Specify any additional immunohistochemical/immunoflourescence assays performed

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10783 Electrophysiology motor unit number estimation compound muscle action potential measurement

Measurement in millivolts (mV) of the compound muscle action potential (CMAP) amplitude for the muscle on which MUNE (motor unit number estimation) is performed

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12375 Respiratory positive pressure device initiation date

Date of initiation of the non-invasive, positive pressure device

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12497 Imaging cerebellum abnormality type

The type of abnormality in the cerebellum on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12334 Respiratory manual percussion session duration

Time of manual percussion use per session

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12289 Tissue specimen section quantify type

Type of quantification used in evaluating the sections taken from the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12529 Biopsy and autopsy ragged red fibers estimated count

Ragged red fibers estimated number

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19790 Medical history pulmonary current intermittent positive pressure breathing use status

Status of current Intermittent Positive Pressure Breathing (IPPB) use

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12700 Electrophysiology motor nerve dispersion result

Amount of test signal dispersion measured during the motor nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12228 Tissue specimen name

Tissue specimen name collected from the participant

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12384 Respiratory tracheostomy tube length measurement

Measurement of the length of the tracheostomy tube

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12505 Imaging eye abnormality indicator

Indicator of whether eye abnormalities are present

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12342 Respiratory lung volume recruitment inhale pressure value

Value of the inhale pressure setting for the lung volume recruitment device

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17908 Tissue specimen intraepidermal nerve fiber statistics other report text

Text description of any other intraepidermal nerve fiber (IENF) statistics that were reported for the tissue specimen by the pathology laboratory

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19799 Medical history endocrine breast bud formation age value

Text of age of breast bud formation detected

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12238 Biopsy and autopsy epon embedded tissue abnormalities location type

Type of abnormality observed microscopically in epon-embedded tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12238 Biopsy and autopsy epon embedded tissue abnormalities location type

Type of abnormality observed microscopically in epon-embedded tissue specimen

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 201 - 225 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.