CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1903-C19827	C19827	Seizure type	Type of seizures had	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1910-C12247	C12247	Biopsy and Autopsy tissue collection method type	The type of method used for collection of the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12524	C12524	Inflammation severity status	Severity of Inflammation muscle diagnostic abnormalities	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1833-C18861	C18861	Health insurance private group other text	The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled	Supplemental	Social Status	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19785	C19785	Medical history pulmonary bilevel positive airway pressure start date	Date of start of bilevel positive airway pressure	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C20325	C20325	Biopsy and autopsy inflammation description type	The descriptions as related to perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12693	C12693	Electrophysiology H-reflex nerve segment name	The nerve segment used for the H-reflex test	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1906-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C17396	C17396	Sex genotype type	The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C12500	C12500	Imaging corpus callosum change status	Status related to changes in the corpus callosum observed in the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1910-C12292	C12292	Tissue specimen Langerhans cell process result type	Result for the number of Burden of Langerhans cell processes in the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C17901	C17901	Elevated creatine kinase Indicator	Indicator of whether participant/subject experienced elevated creatine kinase levels	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19793	C19793	Medical history cardiovascular heart arrhythmia diagnosis date	Date of first detection of heart arrhythmia	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C12232	C12232	Laboratory director name	Name of laboratory director where assessment was performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12703	C12703	Electrophysiology sensory nerve segment length measurement	The sensory nerve segment length measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12231	C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1829-C10975	C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C17402	C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C17432	C17432	EEG focal slowing indicator	The yes/no indicator for electroencephalography (EEG) focal slowing	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19890	C19890	Symptom presentation weakness distribution other text	The free-text field to describe other symptoms participant/ subject shows at presentation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19802	C19802	Medical history endocrine Vitamin D deficiency indicator	Indicator of history of vitamin D deficency	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C12241	C12241	Biochemical or genetic test name	Name of the biochemical or genetic test as performed on the specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12241	C12241	Biochemical or genetic test name	Name of the biochemical or genetic test as performed on the specimen	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19655	C19655	Family history CMD LGMD disorder indicator	Indicator for whether the participant/subject has a family history of CMD to LGMD spectrum disorder	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19761	C19761	Medical history glaucoma diagnosis indicator	Indicator of history of Glaucoma	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.