CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1057-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12728	C12728	Needle electromyography electrode type	Type of electrode used for the needle electromyography	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18838	C18838	Respiratory manual percussion use other text	The free-text field related to 'Respiratory manual percussion use frequency' specifying other text. Frequency of use of manual percussion therapy	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1906-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19954	C19954	Immunohistochemistry dystrophin N terminus status	The status of dystrophin N terminus (DYS3) in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19866	C19866	Medical history speech therapy since last visit indicator	Indicator of change in speech therapy since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C14551	C14551	EEG behavioral state recorded type	The recorded state(s) of the subject during the electroencephalogram (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1868-C19681	C19681	Imaging MRI muscle level of involvement status	The level of involvement status for the muscle tested on the muscle MRI	Supplemental	Muscle Imaging	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19914	C19914	Biopsy and autopsy non rimmed vacuoles status	Non-rimmed vacuoles status in biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12736	C12736	Needle electromyography motor unit action potential activation type	The activation of the motor unit action potential measure during needle electromyography	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18846	C18846	Respiratory other airway clearance method use other text	The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19962	C19962	Immunohistochemistry alpha dystroglycan IIH status	The status of Alpha dystroglycan (IIH) in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19874	C19874	Medical history scoliosis development since last visit indicator	Indicator of scoliosis development since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C17427	C17427	EEG data type	The data type of the Electroencephalography (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1877-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19922	C19922	Biopsy and autopsy minicores status	Minicores status in biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12744	C12744	Electrophysiology neuromuscular jitter mean consecutive difference abnormal count	Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C12391	C12391	Respiratory assessment type	Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19970	C19970	Immunohistochemistry collagen VI status	The status of collagen VI in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19882	C19882	Medical history pain location anatomic site	Anatomic site of pain	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1877-C12603	C12603	Birth length value	Measurement of the participant's/subject's length at birth	Supplemental	Prenatal and Perinatal History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19930	C19930	Biopsy and autopsy tubular aggregates status	Tubular aggregates status in biopsy/autopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.