CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 851 - 875 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19779 Medical history asthma pulmonary assessment indicator

Indicator of history of asthma

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19993 Immunohistochemistry myotilin aggregate level status

Level of myotilin aggregate

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12469 Imaging magnetic resonance imaging session number

Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12526 Biopsy and autopsy type 1 predominance fiber percentage value

Percentage of Type 1 predominance fiber present

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19787 Medical history pulmonary ventilator use indicator

Indicator of ventilator used

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C20327 Biopsy autopsy excessive intracellular lipid status

The status related to excessive intracellular lipid storage pathology which involves excess Oil Red O+ material that is easily identifiable on light microscopy and is evident on other stains including H and E

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18720 Imaging visual analysis location performed type other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19875 Medical history seizures since last visit indicator

Indicator of seizures since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00002 Post conceptional age value

Gestational age plus postnatal age of the participant/subject

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12350 Respiratory high frequency chest wall oscillation system use daily frequency

Frequency with which the participant/subject uses the high frequency chest wall oscillation system device on a daily basis

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19923 Biopsy and autopsy minicores estimated percentage value

Minicores estimated percent count

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19836 Pain anatomic site text

Anatomic Site of body pain

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12767 Electrophysiology short post-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the short exercise test

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Hand Held Dynamometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12424 Pulmonary gas exchange highest end tidal transcutaneous carbon dioxide value

The highest pressure of the end tidal CO2 (ETCO2) or transcutaneous CO2 (TCCO2) check while the participant/subject is sleeping

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17432 EEG focal slowing indicator

The yes/no indicator for electroencephalography (EEG) focal slowing

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12724 Electrophysiology repetitive nerve postactivation elapsed time duration

Interval, in minutes, elapsed after nerve stimulation, at which time postactivation data are being recorded for the repetitive nerve study being recorded

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17881 Respiratory support ventilation mode negative pressure text

Text specifying the negative pressure support ventilation used by the support ventilation device

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19971 Immunohistochemistry caveolin 3 status

The status of caveolin 3 in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19883 Motor function history type

Type of motor function

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12358 Respiratory intrapulmonary percussive ventilation cup liquid type

Type of liquid in the intrapulmonary percussive ventilation cup

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19931 Biopsy and autopsy tubular aggregates estimated percentage value

Tubular aggregates estimated percentage value

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 851 - 875 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.