CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19856 Medical history gastrostomy tube since last visit indicator

Indicator of Gtube placed since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12769 Electrophysiology long pre-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the long exercise test

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18853 Pulmonary gas exchange assessment performed other text

The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed

Supplemental Measures of Gas Exchange Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12726 Electrophysiology repetitive nerve postactivation amplitude measurement

Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18836 Respiratory mechanical in-exsufflator device use other text

The free-text field related to 'Respiratory mechanical in-exsufflator device use frequency' specifying other text. Frequency of use of the mechanical in-exsufflator by the participant/subject

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19992 Immunohistochemistry desmin aggregate level status

Level of desmin aggregate

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19952 Immunohistochemistry dystrophin rod domain status

The status of dystrophin rod domain (DYS1) in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19864 Medical history physical therapy change since last visit indicator

Indicaor of change in physical therapy since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19679 Imaging muscle MRI ultrasound performed type

Type of muscle magnetic resonance imaging or ultrasound performed

Supplemental Muscle Imaging Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19912 Biopsy and autopsy rimmed vacuoles status

Rimmed vacuoles status in tissue

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12734 Needle electromyography motor unit action potential stable indicator

The stability of the action potential measure during needle electromyography

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18844 Respiratory medication nebulized other text

The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19960 Immunohistochemistry laminin alpha2 merosin 300 status

The status of Laminin a2/Merosin (300 kDa) in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19872 Medical history urinary tract infection since last visit indicator

Indicator of UTI since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17425 EEG duration

The length of time for the Electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19701 Imaging muscle MRI ultrasound pattern congenital muscular disease consistent indicator

Indicator of the pattern identified is consistent with a pattern described in a CMD subtype

Supplemental Muscle Imaging Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19920 Biopsy and autopsy central cores status

Central cores status in biopsy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19833 Psychiatric depression indicator

Indicator of history of depression

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12742 Electrophysiology neuromuscular jitter pair or endplate study count

Count of the pairs/endplates studied in the neuromuscular jitter study being described

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19968 Immunohistochemistry dysferlin status

The status of dysferlin in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 201 - 225 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.