CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1903-C19797	C19797	Medical history endocrine early puberty indicator	Indicator of history of early puberty	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C12237	C12237	Specimen overall interpretation status	Status of the overall assessment of the specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C10814	C10814	Parents biologically related indicator	The indicator whether the subject's/participant's parents are biologically related	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18610	C18610	Imaging in plane resolution axis 2 measurement	Axis 2 of in-plane spatial resolution used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C17436	C17436	EEG short form note text	Notes to Electroencephalography (EEG) reviewers	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C12468	C12468	Imaging brain magnetic resonance imaging perform multiple count type	Type of count for the number of brain magnetic resonance imaging (MRI) sessions performed on the participant	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12363	C12363	Respiratory airway clearance medication category	Category or class of airway clearance medication used by the participant/subject	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19845	C19845	Medical history intubated since last visit indicator	Indicator of intubation since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12758	C12758	Electrophysiology blood pressure response Valsalva phase IV result	The blood pressure response to valsalva maneuver during Phase IV	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12715	C12715	Electrophysiology repetitive nerve stimulation study stimulation rate value	Value, in Hz, of the stimulation rate used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18839	C18839	Respiratory postural drainage use other text	The free-text field related to 'Respiratory postural drainage use frequency' specifying other text. Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19981	C19981	Immunohistochemistry CD20 presence status	The status of the presence of CD20 in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1905-C19743	C19743	Goniometry toe measurement	Measurement in degrees of the passive range of motion for toes	Supplemental	Goniometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1879-C12672	C12672	Surgical or therapeutic procedure ventilated indicator	Whether the participant/subject was ventilated during the surgical or therapeutic procedure	Supplemental	Surgical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19941	C19941	Biopsy and autopsy distribution type	Type of distribution of inflammation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19853	C19853	Medical history cough assist since last visit indicator	Indicator of cough assist since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12766	C12766	Electrophysiology short pre-exercise compound muscle action potential measurement	The compound muscle action potential (CMAP) values measured at the pre-exercise intervals	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12723	C12723	Electrophysiology repetitive nerve activation duration	Duration, in sec, of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18847	C18847	Respiratory support device other text	the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19989	C19989	Immunohistochemistry C5b9 presence status	The status of the presence of C5b9 in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1906-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Prior and Concomitant Medications	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19949	C19949	Biopsy and autopsy additional observation text	The free-text field for recording additional observations about the biopsy or autopsy being performed	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.