CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12840 Cardiac MRI ventricle end systolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

 Exploratory Cardiac Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12844 Cardiac MRI ventricle end systolic volume index measurement

Measurement of the selected ventricle's end systolic volume divided by the participant's body surface area in square meters

 Exploratory Cardiac Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

 Exploratory Cardiac Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12837 Cardiac MRI ventricle systolic function result status

Status of the result of the cardiac magnetic resonance imaging (MRI) evaluation of the selected ventricle's systolic function

 Exploratory Cardiac Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17961 Cardiovascular aortic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve

 Exploratory Echocardiogram False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17963 Cardiovascular mitral valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve

 Exploratory Echocardiogram False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17964 Cardiovascular pulmonic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve

 Exploratory Echocardiogram False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17962 Cardiovascular tricuspid valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve

 Exploratory Echocardiogram False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12605 Caregiver primary type

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19518 Country of origin name

Name of patient/participant's country of origin

 Supplemental Demographics False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10675 Country origin maternal name

Mother's country or countries of origin

 Supplemental Demographics False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C11136 Country origin paternal name

Father's country or countries of origin

 Supplemental Demographics False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12602 Discharge post acute location

Location, post-acute discharge, at which participant/subject is currently staying

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12193 Dual X-ray absorptiometry appendicular lean soft tissue value

The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17921 Dual X-ray absorptiometry current corticosteroid use indicator

Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12186 Dual X-ray absorptiometry distal femur raw score

Dual X-ray absorptiometry (DEXA) distal femur raw score result value

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12187 Dual X-ray absorptiometry distal femur T score

Dual X-ray absorptiometry (DEXA) distal femur T score result value

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12188 Dual X-ray absorptiometry distal femur Z score

Dual X-ray absorptiometry (DEXA) distal femur Z score result value

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12513 Dual X-ray absorptiometry distal forearm raw score

The score for the dual X-ray absorptiometry (DEXA) of the distal forearm

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12514 Dual X-ray absorptiometry distal forearm T score

The T score for the dual X-ray absorptiometry (DEXA) of the distal forearm

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 126 - 150 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.