CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 451 - 475 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12375 Respiratory positive pressure device initiation date

Date of initiation of the non-invasive, positive pressure device

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19876 Medical history behavior issue since last visit indicator

Indicator of behavioral issues since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17429 EEG abnormal indicator

The yes/no indicator for abnormal assessment of electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19924 Biopsy and autopsy core like lesions status

Core-like lesions status in biopsy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12334 Respiratory manual percussion session duration

Time of manual percussion use per session

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19837 Pain position indicator

Indicator of pain within a certain position of the body

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12746 Electrophysiology fiber density quantitative result value

Fiber density measured for a particular muscle and side

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12401 Respiratory oxygen flow rate

The flow rate value of supplemental oxygen

Supplemental Measures of Gas Exchange Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12705 Electrophysiology sensory nerve velocity measurement

The signal transmission speed measured during the sensory nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19972 Immunohistochemistry integrin alpha 7 status

The status of Integrin a7 in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12384 Respiratory tracheostomy tube length measurement

Measurement of the length of the tracheostomy tube

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19884 Motor function history maintain indicator

Indicator of motor function history maintained

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19932 Biopsy and autopsy ring fibers status

Ring fibers status in biopsy/autopsy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12342 Respiratory lung volume recruitment inhale pressure value

Value of the inhale pressure setting for the lung volume recruitment device

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19844 Medical history wheezing since last visit indicator

Indicator of wheezing since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12757 Electrophysiology blood pressure response Valsalva phase II late result

The blood pressure response to valsalva maneuver during Phase II late

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

Supplemental Measures of Gas Exchange Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12714 Electrophysiology blink reflex test contralateral R2 latency value

Duration of contralateral R2 latency in the blink reflex test

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12397 Respiratory support use frequency

Frequency of ventilation device use

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19980 Immunohistochemistry CD8 percentage value

Percent value of CD8

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19742 Goniometry finger measurement

Measurement in degrees of the passive range of motion for fingers

Supplemental Goniometry Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19940 Histochemical stain absent text

Specify histochemical stain absent staining

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 451 - 475 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.